u/drkarixo

Hi everyone,

I posted here a few weeks ago asking about your experiences with energy crashes. I'm a physician working on a free companion app to help people manage their energy and reduce crashes, and the response to that first post was really helpful. Thank you to everyone who shared.

One thing that keeps coming up in conversations is how personal and unexpected the triggers can be. People are discovering that things like a stressful conversation, small social moment, or even the weather can drain them more than actual physical activity.

I'm curious: have you discovered things that drain or recharge your energy that you didn't expect?

We're continuing to learn as we build this, and if you have 3 minutes, we put together a short questionnaire to better understand crash patterns. Your input would directly shape what we're working on: https://docs.google.com/forms/d/e/1FAIpQLSffQkJEye65d0ptoArY19sq2msJnNF8L_mIFg_gxgLJeZpdkg/viewform

No pressure at all. Just grateful for anything you're willing to share.

If you'd like to learn more about what we're working on you can check it here: longcovid.haviohealth.com

Karoline

Hi all. I'm Karoline, a general physician. I'm posting with the mods' permission. 

Writing here because a close friend has been dealing with a post viral chronic condition (not yet diagnosed with Long COVID) for over a year. Watching him navigate it with normal tests, dismissive doctors, money spent on things that didn’t help and frequent energy crashes is what brought us to try to find ways to support people going through the same.

Over the past few months, we’ve been talking with around 200 people across multiple countries living with Long COVID. Whether someone's a few months in or several years into Long COVID, energy is a universal struggle. The constant cycles of ups and downs, pushing through a good day and ending up with several bad days and not knowing if anything you're trying is helping you move forward. 

As we continue learning, I’d love to ask here if people could share how energy shows up in day-to-day life:

• How do you manage your energy right now? How often do you crash, and can you usually tell what caused it?
• Have you discovered things that drain or recharge your energy that you didn't expect?

For full transparency: my friend and I are building a free Long COVID companion app focused first on energy, pacing, and helping people see patterns over time. Easy and simple, to support you day to day, and help you see your progress over time. You can learn more here: longcovid.haviohealth.com . If you leave your email there, I'll personally keep you posted on our progress and launch of the free app.

Note: We're not collecting data to publish or sell. The aim is to build something that actually helps people in this community, and to do that we need to learn from the people living with it.

I'll be in the comments today and tomorrow, happy to answer anything. If you prefer DMs, feel free to reach out there too.