Going to attempt treatment from TBI
I've spent months researching ways to help with a TBI I got from an accident back in December. I ended up with 3 brain bleeds and 2 hematomas, and spent a month in the hospital. I have zero memory of the first two and a half weeks there — none at all. My family took video of me during that time, and honestly, I thought at first it was just to make fun of me later. Turns out they were told I was 50/50 to survive. The hospital had my wrists strapped to the bed because I wasn't at any appropriate level of behavior. Once I started getting my personality back, they took the restraints off.
One doctor told my family, "Did you ever see 50 First Dates? He's like that, except instead of a 24-hour reset, he's resetting every 5 minutes." Still crazy to think about.
Three months later, an MRI with my neurologist showed that two-thirds of my left temporal lobe is necrotic — dead. Not "healing" or "growing back," just gone. Part of my right frontal lobe is necrotic too, though much less of it. How I'm walking, talking, driving, and living something close to a normal life is honestly still a mystery to the doctors, but I am.
The biggest issue I'm dealing with now is aphasia, and I've lost a lot of my memory of the past. I don't know if it's coming back. Right now I'm just focused on stabilizing and doing what I can to protect and strengthen whatever brain function I have left.
Sleep is hit or miss most nights. And oddly, my temperature regulation is off too — my brain isn't managing it right. In the Cali summer heat, my body gets as hot as it's ever been, but I don't sweat. Used to sweat like a leaking pipe before the accident — now nothing. Wild.
All of this is why I'm starting this trial: to try to help, heal, and strengthen whatever brain I have left, and get back to something closer to normal life. I really hope these meds live up to the research I've done.
—— The treatment is a round of Cerebrolysin ——-