u/ele_zea

Hello! Has anyone experienced Plaquenil worsening POTS (postural orthostatic tachycardia syndrome)?

Can UCTD manifest itself as POTS syndrome? I mean, I have almost all the symptoms that you can see in pictures about POTS, for example—I have almost all of them. For the most part, I'm not sure if they're vegetative symptoms or neurological ones (so I won’t list them all here). But I don’t have any typical rheumatological symptoms except for a rash on my face, terrible fatigue(exhausted). Instead of Raynaud's, I have venous stasis. However, I have A NA 1:320 speckled, positive RNP 70, and borderline nRNP/sm. I also had myocarditis and I have Hashimoto's. But the rheumatologist decided to try HCQ. And I’m a little worried that maybe this isn’t it at all. I’ve had POTS since 2023.

Hello everyone. Please share what specifically helped you—whether it was medication or a lifestyle change—that made you feel like things had definitely improved and that you were back to your old self. This is more of a small survey for research purposes. I have to do all the research myself. In my country, nobody even knows what POTS is.

I look forward to your feedback. And thank you for your responses.

Hello everyone. Please share what specifically helped you—whether it was medication or a lifestyle change—that made you feel like things had definitely improved and that you were back to your old self. This is more of a small survey for research purposes. I have to do all the research myself. In my country, nobody even knows what POTS is.

I look forward to your feedback. And thank you for your responses.

Hey guys, has anyone experienced severe insomnia and fragmented sleep while taking HCQ? I've been taking it for 10 days and it's no better with sleeping. I'd say it's getting worse every day, and the anxiety is getting worse. I have POTS, and I was diagnosed with UCTD and Hashimoto's (hormones are within the normal range).

Is it normal?