u/emkay2121

▲ 1 r/BFS

Tightness or Tension?

I’m feeling a bit more anxious than normal since my 2nd opinion and first neuro appointment since my emg got moved up to next Thursday.

It all started in October of 2025 after a very stressful week. My twitching began in my tongue then spread everywhere. Now my left calf twitches the most out of anywhere. I did have a normal emg of both calves two months into twitching (December of 2025) BUT in February of 2026 I began feeling like I have tightness and tension in my left calf. It’s been checked by my friend who’s a physical therapist and she said it’s not spasticity. Does anyone else have this? Like the muscle sometimes aches but also just feels tight?

I feel like my muscles overall fatigue easier. I’m just exhausted by all this.

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u/emkay2121 — 2 days ago
▲ 2 r/BFS

Thoughts?

How many months of widespread twitching until you feel you’re in the clear? I’m 8 months in with a clean emg that was done at 2 months.

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u/emkay2121 — 21 days ago
▲ 3 r/BFS

Today is my birthday

Hi all! As the title says, today is my birthday and I’m turning 28. I’ve had this twitching and other various symptoms (myoclonic jerks, perceived weakness, tightness, cramps along my ribs and a general sense of muscle aches) now for almost 7 months.

I’m working every single day to try and move past this. I’ve gone to therapy and started Buspar for my anxiety which honestly has been amazing - no side effects at all.

I had a normal emg completed by an als specialist two months into twitching. I was actively twitching in that limb (calf) during the test and the doctor said they were benign.

I know all of us here have researched the hell out of bfs and anything of a similar nature and I’m just curious, with everyone’s experience, do you think almost 7 months in with no clinical weakness, a normal clinical exam at two months and a normal emg at 2 months is likely enough to rule out ALS?

For my birthday I’d just like to move past this all and delete this app. I’m working hard, praying, getting some mental health support…

I have one final follow up with a neurologist in July and it can’t be here soon enough.

Thanks all!

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u/emkay2121 — 2 months ago