u/freejus

Anybody else a Wilco fan and rolling to Firefly to die from heatstroke in a portapotty next weekend?

Stage 4 NRAS. 40 y/o male. 15-20 Mets on liver and two nodules in lungs. 12 sessions of fulfirinox complete and 5 of radiation to main tumor.

First PET showed limited improvement. Most recent that I just discussed Tuesday show…liver not getting better. Some spots have grown a bit actually.

My bloodwork and all is still fine along with liver function, but my amazing oncologist is now nervous himself and we basically had a little breakdown together. He’s not sure what else he can do for me now and wants me to get involved with a university that has access to trials.

I asked about the HAI pump and he said he only knows Duke as the place closest with a surgeon who does that, and it would be tricky.

I live in Charleston 5 hours away. I have no idea how this would work even if I get accepted and get a pump. I have to tell my work if I’m going to keep working or not this week and the logistics of doing out of town therapy will be a nightmare.

Looking for any advice here. I can probably make it two years before running out of money but if I can live then I get to see my daughter keep living a good life. This shit is hard as hell though.

Has anybody else been to a point where they weren’t getting the response they thought and had to pivit and something else worked? Especially curious about anybody who has gone through Duke. I may need to sell my house and rent a place up there or something. no idea, it’s all overwhelming.

Thanks to all in this community. You’re all great.

Ugh, should not have read that PET scan result before I saw my doc.

Maybe it’s time to stop working and just ride this out. Feeling defeated for sure. all that nasty chemo for nothing so far.

*Coudad Bonita* Thoughts? Went tonight but wasn’t impressed with the food sadly. Not sure if I’d give it another shot, but willing to hear from others for what they liked there.

Hi all,
Done 12 rounds of chemo so far but the pain from the tumor has been pretty persistent.

I start 5 consecutive days of radiation to the main tumor tomorrow. Radiologist seemed pretty certain side effects would be minimal but I still need to know what I may expect.

Thanks.