My father is starting to lose mobility in his hands and it’s causing him to get stalled in his power chair. His hands will stiffen up, then he can no longer control his wheelchair. What is the next step when this happens? Is there an alternative way for him to maneuver his chair?
My dad was diagnosed with ALS in 2024 and now has a G Tube and uses a BiPAP. He really needs to get the tracheostomy but is scared of relying on family and caregivers for 24hr care. He recently got aspiration pneumonia from his BiPAP blowing foreign material into his lungs, which makes the tracheostomy that much more necessary. He’s low on energy and will to do things, he’s struggling to speak and gets frustrated when practicing the eye gaze because it’s slow or falls out of calibration. He often just gives up or says he doesn’t have energy to practice it. What can I do to support him?
I feel very disconnected from the world and humanity, I don’t have many friends and during depressive episodes I lose contact with the few friends I do have and then have to do an apology tour when I’m feeling like myself again. Is this common with other BP2 people??