u/glitterglam1402

filgrastim pain the same during stem cell harvest?

i know it's so unpredictable but for people who had filgrastim both between chemos and before stem cell harvest, were the pain levels the same? i'm about to start them for collection but it's double the dose daily i had last time so worried honestly, thanks

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u/glitterglam1402 — 2 days ago

refractory cancer and i'm overwhelmed

technically have a choice between radiation or immuno then auto stem cell but onco thinks latter would be much better. frustrated as my life was just getting normal again with return to volunteering, hair growing back, i wasn't even worried otw to getting results.

also been worrying as hospital i'm supposed to get the transplant at recently closed some of the transplant ward due to mould/water issues that they think have led to preventable deaths in the past. not reassuring knowing how immunocompromised you'll be during that time.

does anyone have any experience/tips on having bendamustine and brentuximab/auto stem cell? and how does it compare to chemo if you had that before as well? also any tips on staying motivated/positive when alone during treatment. i had my parents with me almost the whole time before (20 now but was 19 during chemo) but due to jobs and transplant protocols know i'll have more time being alone than last time and want to try keep myself occupied and distracted. thanks🩷

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u/glitterglam1402 — 6 days ago

how long till you get update on royal mail collection parcels?

hi, i sent a parcel in the middle of april and it seems to still not have been collected. when i looked it up it says royal mail can hold parcels for 18 days but it's been past that point and i've had no update, i messaged the seller to ask if everything was okay but no response. i thought i would have got some sort of automated message by now if the parcel wasn't collected but i've had nothing. how long can this go on for lol?

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u/glitterglam1402 — 12 days ago