u/gloomyinGA

Image 1 — Looking for advice and reassurance (and similar stories?)
Image 2 — Looking for advice and reassurance (and similar stories?)
▲ 2 r/Celiac

Looking for advice and reassurance (and similar stories?)

My 8 year old son has been experiencing diarrhea nearly every day for three weeks. He also threw up at various points throughout these three weeks, though he hasn’t thrown up in over a week. For most of the last three weeks, he has had very little appetite. He recovered his appetite for a few days recently and then suddenly yesterday he was back to no appetite and feeling sick.

At first, we thought it was a viral illness. The longer it went on the more worried we got. I ended up taking him to the ER at our local Children’s Hospital one weekend because he was having a hard time eating or drinking and keeping anything down. They ran a plethora of blood and stool test. Everything came back negative, except for a celiac test and a calcoprotein test. Unfortunately, those tests came back after we’ve already been discharged from the ER after receiving fluids. We followed up with a pediatric gastroenterologist to said that yes, our child does need an endoscopy to either confirm or rule out celiac. The endoscopy is scheduled for Monday. But in the meantime, my son is really suffering. He’s losing weight and he was already extremely skinny to begin with. He has little energy. He started school 2 1/2 weeks ago, so it’s been very stressful for him to restart school while being sick.

I’m including his test results for reference. The rest of his bloodwork was normal.

Advice? Similar experiences?

u/gloomyinGA — 12 hours ago