u/gretchmoney

Hi - I'm 35f, diagnosed 10/1/2025 with Invasive Intraductal Carcinoma with auxiliary nodal metastases. ER/PR - Her2+. I had a 2cm tumor on my "bra line" (basically on my ribcage, just under my boob) & 2 impacted lymph nodes, considered stage 3.

I did 6 rounds of Herceptin, Perjeta, Carboplatin, & Docetaxel, ending late February. Had some push backs due to insurance getting my DMX with reconstruction but finally had DMX 4/30/26 with reconstruction 5/13/26. By my follow up 5/21/26 I was already feeling a bump in the same spot! I got it biopsied on 6/10/26 & lumdectomy 6/23/26.

I was supposed to start 14 rounds of Kadcyla today when my oncologist told me the pathology came back saying Her2-, which completely changes treatment plans. My oncologist is asking for a 2nd opinion on the pathology I guess as well as ordering some other genetic tests, etc. Which I also did back in October.

Has anything like this happened to anyone here? I feel so confused and like I want to keep optimistic towards maybe the sample wasn't great enough or maybe something was a miss and I'll still be Her2+? I dislike being in limbo like this 😭