u/gypsybird1829

I am looking to make a move to get access to better healthcare for CPRS. I want to stay somewhere with warm weather for obvious reasons, so I am looking at the Carolinas, California, and Texas. Currently in Florida but have had no success with doctors here. I've been told my conditions together make me a complicated patient and most docs here don't want to take me on. Combined with the 10+ month waiting lists to see specialist in my area I don't see a solution besides moving. If anyone has any docs or facilities to recommend that treat CRPS I would be very grateful!

I'm just curious how many of us with CRPS have been dealing with medical gaslighting? It seems to be getting worse, at least by my experience. I've had this happen before, but today seems to be the one that pushed it over the edge for me. I went to a new PM doc who told me that while some used to think that CRPS spread from one side to the other, there's no proof that CRPS can spread. Excuse me?! I've personally had it spread up and to the opposite side. Are you telling me that it's all in my head?

So I'm just curious. How many of you feel like you have been medically gaslit before? Do you think it's because doctors don't understand our condition? Are they burnt out? What do you think?