When should I ask for a second opinion?
I (32 F) have been seeing a rheumatologist since November. Did a 6 month trial and fail of plaquenil. Just started colchicine. No diagnosis yet because “I don’t fit into anything perfectly.”
Symptoms:
\- 30lbs unintentional weight loss
\- joint pain: large and small
\- hand/ wrist and feet/ ankle stiffness with movement
\- internal tremor
\- hands shake with movement
\- gastritis
\- ulcers: genital, oral, and nasal
\- red bumps that itch then ulcer
\- neck stiffness followed by severe headache
\- strange neuro symptoms
\- photophobia
\- livedo reticularis
overall pain is progressively getting worse and quality of life has decreased significantly. Each time I see the rheum I have to fight to start medication or change it. First appointment the rheum told me it’s not autoimmune. Now it’s “unknown cause but possible autoimmune”. I’m just at a loss. I’m not a rheumatologist but something doesn’t feel completely right.
EDIT:
PMH: endometriosis/ adenomyosis stable s/p hysterectomy 2 years ago, AKI from ibuprofen, VSS/ migraine since birth and stable on ajovy x 5 years, celiacs dx 11 years ago and stable, disc drusen bilaterally stable and unchanged since birth. Being followed by Gyn, neuro, GI, pain, spine, rheum, derm, ophthalmology.