Hi everyone, I’m conducting an independent industrial design research project on how limited hand strength or dexterity affects everyday activities. I’m looking for participants who experience some difficulty with hand strength or dexterity. The survey takes around 3–5 minutes, and there is an optional follow-up interview. I’d be very grateful for your participation.
I really just want to know if anyone has had a similar experience and if so what helped and what came of it. I know that autoimmune is extremely fickle, so I'm not looking for a diagnosis lol that's what I have Dr. appointments for.
I've (30F) had unknown issues with my health since childhood. For the past year, I have been having Tachycardic and Bradycardic episodes daily, with no distinctive cause. A few weeks ago, I started having joint pain. It started in my left elbow, then traveled to all over my body (fingers, toes, hips, knees, ankles, wrists, back and neck). I've had chronic fatigue on and off for a long time, and so I didn't really think too much of it when the past couple of months I have been really low energy and have to force myself to go to work, but then the joint pain became really obvious. I saw a virtual doctor, who prescribed me with Methoprednisone (6 day taper), which did not really help. Once I got off of it, the pain was much worse and my symtoms seemed to intensify. I did a full blood work-up 3 days after I finished the steroid with C-Reactive Protein, ANA (Multiplex w/reflex), RF, TSH, and Thyroid Antibody. My C-Reactive was elevated, ANA Positive with SCL-70 marking 1.4 (no tider was done so I don't have those numbers).
I don't see the Rheum until December, but I am really struggling with the pain. It seems to get worse later into the day with little to no relief from at home Tylenol, Aleve, or Ibuprofen. Since the pain bounces from joint to joint, heat/ice doesn't really help either. Standing in the shower too long makes the leg joints aggravated and I just feel hopeless.
A study on Undifferentiated Systemic Autoinflammatory Disease. Researchers grouped study participants into four categories. Would love to read the entire study. Big picture - researchers are digging into USAID!
Case involves 14-year-old male, clean bill of health. Not diagnosed with any other health issues. Very active in sports. Dealing with a significant flare on head in the area of the initial site from 2023. The area we're currently dealing with was badly damaged from the initial case which took about 6 months to diagnose.
He has had it develop two other areas (skin and knee/thigh) very minor times. Steroids cream quickly resolved. We believe trauma/ fungal infections seem to be what triggers the immune response.
I am wondering if anyone has any thoughts as to why this could be happening now. He can have other significant wounds from wrestling but have no PG response.
Our family history did show other "autoimmune" responses in our household. Mother has hashimoto's (ongoing) and a case of severe vertigo, sister had a rheumatoid arthritis like spell from a likely viral infection (has not had any episodes like that since). All which occurred in 2023 at the same time the first PG episode occurred.
Are there any tests or Labs recommended? Any environmental things we should look at?
Located in the North Georgia area. Currently testing for radon. Drinking water from what appears to be a very clean, well close to spring head.
Any thoughts or ideas are welcomed!