u/herbertsurprise

How much sleep is considered normal for RA?

I have been struggling with knowing if my sleep is normal for RA or not. I find myself sleeping 10+ hours nightly, and if I don't physically force myself to get out of bed, I will sleep 12+. I have a very difficult time waking up in the morning, and I will frequently wake up, fall asleep for 20-30 minutes, have a weird dream, wake up again, and the process will repeat for a while. If I have a specific time I need to be awake, I need five alarms to be able to actually wake myself up. I take naps most days as well because I get too tired to function. I am constantly drinking coffee or energy drinks, and even then, it's not enough to keep me from feeling tired and fatigued.

I've been on infliximab for almost 6 months now (also have been on MTX and HCQ for over a year and a half at this point and gabapentin on and off for a decade, but the gabapentin predates this level of fatigue), and I've noticed a drastic decrease in physical symptoms... but the fatigue and sleepiness is still getting to me. I am exhausted every single day and struggling to stay awake.

Is this just what life is like with RA? Is everyone else as tired as I am? How are you all surviving it?

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u/herbertsurprise — 4 days ago