r/rheumatoidarthritis

I hate the condition

Hi, I’ve been getting a lot of pain in my wrists, hands, knees and toes. Not to mention my ankles get super swollen. My bloods came back recently and my doctor didn’t contact me despite my CCP testing positive. I’ve been referred to rheumatology but the pain is so bad. My whole body just aches I can’t do anything without being in pain, it’s draining. I’d appreciate any advice about how to deal with all of this.

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u/Few-Algae1117 — 8 days ago

Has anyone with RA had this symptom with pins and needles?

Hey everyone, I have RA that’s not responding well to medication (Sulphasalazine). I’m currently waiting to get switched to a biologic but in the meantime, I’m having tons of weird symptoms.

I live in a Spanish speaking country and though my doctor is pretty great and communicates well enough in English i think sometimes we have ‘lost in translation’ moments. I’ve tried to explain this symptom to him and he seems to not get it or think it’s unrelated to RA. But I feel pretty sure that it’s at least related to autoimmune activity and so I thought I’d ask this community if anyone else has had it.

So I get really swollen areas around the base of my hands and wrists, they turn red and kind of puff up, and then everything else (my hand /wrist) gets really stiff and increasingly hard to move. This, on its own, definitely sucks but what sucks even more is if it happens on the inside of my wrist where all the veins are.

What happens then is it feels like I lose circulation in my hand completely, I get crazy pins and needles that last for hours, the only thing that seems to help is putting that area of my wrist under running water, usually warm but I tend to try all temperatures because I have no idea what I’m doing. And if I keep under the water and try moving my wrist back and forth (difficult since it feels frozen), I can eventually get the blood back into my hands. But I have to do this water trick over and over because the swelling just comes back and ibuprofen doesn’t seem to help.

Has anyone had this? If yes, what IS it? Are there any tricks, anything that works? It’s honestly super scary because i feel like the blood literally can’t get into my hand. I would love to know if any of you have had this experience.

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u/AbraWest — 8 days ago

Just A Vent - But My Jaw is Killing Me

I live alone and my SO is out of town for a family funeral. My cat passed away a couple of weeks ago and my stuffed animals are tired of hearing me complain. So here I am.

It's rare, thankfully, but I sometimes get flare in my jaw and I woke up with one today. Chewing, talking, etc., just make it worse. I had to eat so had pasta since it's soft and doesn't require chewing like meat, etc. I've taken 100mg of Tramadol and it's still killing me. I have a CBP topical I use sometimes but don't see how it will help in this physical location.

Thanks for letting me vent.

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u/Kodabear213 — 8 days ago