Pain along Vp shunt tubing VP shunt is currently 20yrs old would love advice
Hi I all, I am 27f who currently has had only 1 revision and has had my current shunt for 20yrs I am incredibly lucky but am in the dark when it comes to managing what I have going on. I transitioned to adult neurosurgery 2yrs ago and met with said surgeon because I was experiencing what I thought could possibly be a “malfunction” right eye pain (shunt is on right side), headaches, nausea, etc. I received a shunt series and was told I was ok!
2 yrs later the eye pain, headaches, etc are all still here. I now have a tugging sensation in my neck when I move my head certain ways and I’ve woken up some mornings with my tubing in my neck sore and having my neck on/near me shunt feel “stiff” along with the stiffness I will feel incredibly nauseous. I have called my neurosurgeon to have them maybe do another shunt series (waiting for them to call back to book the appt) but I am under the impression because of how long my shunt has been with me that they do not want to touch me until I cannot function. I have never had my shunt settings changed or anything over the years the only thing I’ve had to maintain my shunt issues was a nerve block when I was like 12 😫 does anyone with a long term shunt have any advice or have any answers if they experienced something similar? Thx