u/honey_cosmique

Mods: I hope it's ok if I post this here, it is a hot topic in the US. It's sort of MS/treatment relevant.

I just need to get this out of my head and maybe calm down a bit. I get my next Ocrevus infusion mid-October, so the latest I can get the flu and covid vaccines for the coming season is mid-September. Here we are getting to the end of August and I've heard nothing about whether or not there will be vaccines for these this season much less when they would be available here in the US. I check the CDC and FDA websites every couple days and have seen nothing since May about generally available vaccines. I did see news that the FDA approved an mRNA flu vaccine a few weeks ago, but only for people 50+yo. No indication of when it would be available. I'm kind of freaking out since I'm on Ocrevus and I'll get more vulnerable than I am now come October. Without a vaccine for me or potentially anyone else, I'll be masking up pretty much all the time like back in 2020 and 2021 before the covid vaccines hit. So yeah, I'm scared.

We had a pecan tree volunteer in our backyard this year and I t seems to be pretty happy where it is. I think it would be fun to keep, but I think it might be too close to our fence and our house. It sprouted about a little under a foot from the fence and 20-25ft from our house. I feel like it’s probably too close to both. It also sprouted about 7ft and 10ft between two hackberries. TBH, I don’t care too much about the hackberries, but they were here when we bought the house and it’s nice to have the shade for now.

I’d be sad to cut it down, but want to see if my gut is telling me the right thing before I do anything. What do you all think?

This morning my husband and I did some yard work to get ready for grilling and smores this evening. We didn't need to work on a very big area, just needed to do some weeding. I was outside for a while with some breaks to spend a bit of time inside. I live in the south where it's pretty warm and humid even in the early hours. I'm the type of person that has a hard time stopping a task before finishing it.

I took some precautions, wore shorts, a loose tank top and flip flops. I took a pint of ice water outside with me and periodically waded in our splash pad to cool my feet.

My MS is pretty quiet these days, I feel "normal" most of the time. But doing all of that this morning was a reminder that, yes, I really have MS. I became very fatigued, started having problems with balance and started to get a pseudoflare. My husband made me go inside noticing this. I took a long bath in cool water, I didn't even feel comfortable to stand and take a shower. The bath was nice and helped. Now I'm feeling more alert, better able to keep on my feet, but still fatigued.

I bought a cooling neck thing earlier this week, the kind with ice packs. They're in the freezer right now and I'll use it this evening along with everything else, maybe put on my swimsuit and even go as far as sitting and splashing in the splash pad. :)

So stay safe out there, everyone.