How the heck do u guys handle scheduling infusions?
Im on Ocrevus and when i was first diagnosed they assured me my care team would be on top on the scheduling but that hasnt been the case. Im really trying to do everything ahead of time to make sure my medication is on time.
I usually contact my care team to say “hey, just making sure everythings good with my infusion to be scheduled!” and i usually get a “we are starting the process and the infusion center will reach out once we are ready to schedule”
I did 2 weeks in advance the last time and had to stay on top of it only to have to call the infusion center myself and they told me they had a new system and that was the issue, fine, that’s reasonable.
THIS time, i contacted my care team a little more than a month in advance
(im due in a week if we’re going by exactly 6 months)
I got, “we are processing it ..”etc.
during this time i renewed insurance and my ID stayed the same and ive had other apts outside the infusion since then.
i called the insurance for other apts but everytime i did they assured me there was nothing processing for authorization so i started to get annoyed and finally contacted my insurance and asked specifically about the infusion and they said that it wasnt processsing because i actually have it already pre approved up until October. ummmm okay…..
So i reach out to my care team and im like….insurance says theyre already approved and now my team responds and says its saying my coverage ended and requesting my cards info.
Granted i didnt think to check to see if my Group ID or Rx changed on the card so im partially at fault but im frustrated because it feels like i always end up doing all the legwork to figure it out. i guess i want advice but also validation if anyone else deals with this. cuz i always end up panicking about my infusion being late.