Seeking advice for self advocacy
I’m 38M and in 2021 I had a fairly severe L4-L5 disc herniation. I had bilateral weakness and numbness from the waist down and was unable to walk normally. I went 7 weeks between injury to my discectomy with partial laminectomy. Post op was normal but I was left with lasting neuropathy in both legs, feet, and toes. I occasionally have numbness in my arms and hands too.
This became my new normal, living with constant burning nerve pain. I go through periods of relatively low pain and then it can flare up. I did see my neurosurgeon for a follow up in 2023 with a new MRI and everything looked normal for 18 months post-op. My neuro prescribed gabapentin for the nerve pain and that seemed to help.
The pain had gotten quite severe and the lower back pain is also back. I have been trying to get back into my neuro’s office since June 4, 2026 and the earliest is November. I am starting PT in September but am I expected to just hang tight in excruciating pain until then? How is that humane?
I’m seeking advice on how some of you folks have articulated your amount of pain to your primary and also neuro doctors because I feel I’m not saying the correct things to them. I explain that every waking moment of my life is spent in agonizing pain. That sitting causes me to be in pain and that standing for more than 10 seconds soon becomes excruciating with the burning nerve pain in my feet and legs. I’m not sure what else I can do to convey to my medical team that what I am experiencing is severe and I want some relief from the constant pain.