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u/jmurphree

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▲ 4 r/RealMorgellons

Two Types of Morgellons Patients

In this clip, Dr. Steven Feldman — board-certified dermatologist and dermatopathologist, professor at Wake Forest, author of 700+ medical publications, and a featured expert in the documentary Skin Deep: The Battle Over Morgellons — draws a line a lot of people don't expect. He describes a group of patients whose sores may come from inside the body, an immune or bacterial cause, and says plainly: "I don't know that that's psychotic… I think that's real."

That's a striking thing to hear from someone usually quoted on the "delusional parasitosis" side: not every Morgellons patient is delusional, and medicine doesn't have the full answer yet.

🎙️ This is just one moment from my full interview with Dr. Feldman, where we go deep on the CDC study, the fibers, Lyme testing, and what the research really shows. Watch the whole conversation 👉 Quality of Life and Morgellons, Treatment Considerations with Dr. Steven Feldman

youtube.com
u/jmurphree — 3 days ago
▲ 5 r/RealMorgellons

Looking for Men and People of color for Morgellons research.

"Hi everyone, my name is Ryan Goeckner and I'm a researcher working on the Morgellons Lived Experience Project at Lehigh University. Thank you so much to everyone who previously participated in our interviews with Morgellons patients, their families, and doctors/researchers.

As we've started working on the book, to be published with Routledge, we noticed that we're not as saturated with some perspectives that we think are important to include.

So, we've decided to reopen recruitment for specific Morgellons patients to make sure we can represent those perspectives. We are currently hoping to interview:

  • Men
  • People of color

If you'd like to learn more about the project or follow the book;s progress, you can find us here on Facebook at "The Morgellons Lived Experience Project". I'm also happy to answer any questions you might have.

Special thank you to the admins for allowing us to post here! If you're interested in participating in this study or learning more about it, you can contact me here or email the lead researcher on the study at cmdaley@lehigh.edu.
Thank you!"

u/jmurphree — 8 days ago
▲ 12 r/RealMorgellons

I’d rather have cancer." 💔

These are the words of a patient struggling with Morgellons. Why? Because when you have a known illness, people rally around you. But with Morgellons, patients often face isolation, disbelief, and abandonment from the very people who should be their support system. It’s time to change the conversation around invisible illnesses and medical gaslighting. We need more compassion and less judgment in the medical establishment. Hashtags: #Morgellons #InvisibleIllness #MedicalGaslighting #ChronicIllnessSupport #WellnessByDesign #HealthAdvocacy #PatientStories #MentalHealthMatters #ChronicLyme #CompassionateCare"

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u/jmurphree — 19 days ago
▲ 30 r/RealMorgellons+1 crossposts

Morgellons

What in the hell is this?

I did a deep dive after a feed showed up of this guy claiming that these are man made synthetic parasites that get into your body. He showed all around his room these fibers standing straight up.

Then I looked on Reddit and its thousands of people accounting this.

I google it and it’s a delusion.

But I find on other sites that to say it’s a delusion is inaccurate but its body produced keratin fibers that are expelled from the skin.

I’m seeing people pulling these strands of like spider web looking strings coming out of their body.

I have never in my life heard of something so controversial, strange, polarizing…

What in the hell!?

reddit.com
u/ArcteryxAnonymous — 18 days ago