Any advice for a young person with an essential tremor?
Hello, I (20) went to the neurologist today because my unknown tremor had been getting bad recently and I wanted answers, but long story short apparently I’ve been diagnosed with essential tremors since I was fifteen, but since I had other medical things going on they forgot to explain it to me.
I am going to be starting primidone because I have asthma and we are avoiding propranolol, and I have hope for that, but as of current my functioning is frustratingly impaired. It’s gotten to the point where I can’t even read my one handwriting, and god forbid I reach for something in a crowded cabinet because everything will fall. I also have a tremor in my legs when I’m standing still which can be painful and embarrassing.
I’m glad I finally have a treatment available but reading that this is a progressive condition has only gotten me worried. My family members who have it all got it in their early 30s, and while those from my generation are doing well with meds, my aunts who are in their sixties are struggling a lot more now. This is causing me some anxiety about my future, since I read that the rate of worsening will probably be similar.
Overall does anyone have any advice/ similar stories that they are willing to share?