u/joy_longdivision

gimme the goods

Hello friends,

i’m talking a whole range of podcasts.

Think of the podcasts that you wish you could listen to for the first time again.

My current joys are:

\\-music/ musician podcasts
\\-philosophy/ anthropology
\\- psyche exploratory
\\-lifestyle/moral/ exploration and improvement
\\- interesting history podcasts
\\-socialism/political
\\-science
\\- anything funny heh

if you are also interested in these topics, or adjacent, i’d love to hear what podcasts you have been frequenting

gimme the goods

Hello friends,

i’m talking a whole range of podcasts.

Think of the podcasts that you wish you could listen to for the first time again.

My current joys are:

\-music/ musician podcasts
\-philosophy/ anthropology
\- psyche exploratory
\-lifestyle/moral/ exploration and improvement
\- interesting history podcasts
\-socialism/political
\-science
\- anything funny heh

if you are also interested in these topics, or adjacent, i’d love to hear what podcasts you have been frequenting

Hi guys,

After a really long diagnostic period, it was determined that I have Pots- but why I have it? Who knew

I have been a frequent flyer in the Docs office for as long as I can remember. The Pots diagnosis has truly been helpful, disappointing and a giant pain in butt, but helpful. But it wasn’t enough to tie together loose ends.

To preserve anonymity, I am going to try and be as vague as I possibly can. I have recently gotten in contact with a biological parent for the first time in a very long time with the hopes of determining the genetic likelihood of another disease I have, to do with my reproductive health.

During this conversation, my parent disclosed an absolutely IDENTICAL health history to my own. Before I even mentioned my own history, they explained they have been dealing with POTS for years. As well as hEDS. This parent and their siblings, nieces all have it and said that this is to do with a TNXB gene. they advised i should see my gp to determine I have this also.

I have always been bendy in all the wrong ways. My shoulders and knees are always swimming around in the wrong places, i always thought my elastic skin and flimsy digits were a party trick. Over a year ago, my little finger on my right hand stopped working, and i have these little nodules popping up on my knuckles. My nails are paper thin. My nasal passages are collapsing. I have a haemangioma (tissue tumour) on my spine and have never felt comfortable in my own body. I still have so much to learn about EDS, my knowledge is limited but if this sounds like you/ something you experience please tell me what to do

How do i get tested for this gene, i know the odds are not in my favour. My body speaks for itself at this point.