u/lilbbtee

i saw something on tiktok about mckenzie having a sister and how they took away her bedframe and wont let her out of the house and laugh at her, and that mckenzie is the golden child. does anyone know anything about that or can direct me to more chats about it on here, i searched and couldnt find any mention of it? it was so chilling, and when i saw photos of her sister i just felt for her, its scary, i hope shes okay. from the sound of the tiktok it sounded like theres a narcissistic abuse dynamic happening in the family, its very typical of familys where narcissism is rife. there is a scape goat child and a golden child, where the scape goat gets bullied by the parents and the other sibling (s). honestly its really gotten under my skin and its so horrifying, if anyone else has any info on this let me know please

ive read so much about tirzepatide being helpful for endo symptoms, pain, PMOS (formally PCOS) but im not working currently due to my illness and i cant afford it. wegovy is a much more affordable option, but i dont see as many success stories or chat about it in general? anyone here its worked well for?

ive gone up 2 dress sizes so id like to lose some weight, but id also like the benefits of managing endo symptoms and my PMOS which im absolutely sure i have but my doctors are being very slow and unhelpful with diagnosing it.

ive been offered wegovy at a starting dose of 0.25mg

any help or info would be so so helpful! thank you x

hey all <3 (IF YOURE IN THE US TOO ID LOVE TO HEAR YOUR THOUGHTS IF YOU HAVE EXPERIENC WITH THIS!)

i'm 9 weeks post excision surgery, based in the UK, and i've been seeing so much amazing information about GLP-1s microdosed for inflammation and managing endo symptoms, and also PMOS (formally called PCOS).

for context: i have chronic pain and all the classic endo symptoms, but i've also got hair thinning in the hormonal areas, worsening acne, and i've gone up 2-3 dress sizes in the past 6 months. my doctors have been pretty dismissive about the PMOS side of things and i'm still waiting on answers, so i'm trying to take things into my own hands a bit, i just can't keep going like this.

in the UK, GLP-1s aren't something doctors will prescribe for these conditions easily, and going fully private is really expensive, especially when you're out of work (which i am, my endo got really bad before surgery and i'm still recovering, hoping to get back to work in the next few months).

i've been offered tirzepatide through one of the standard weight loss services at a low dose (2.5mg), which is much more affordable, but i wanted to ask whether anyone has experience using it for endo or PMOS specifically? and does anyone have a sense of how soon post surgery is too soon to start?

any non judgmental advice would be so so appreciated, thank you in advance <3

hey all <3 (IF YOURE IN THE US TOO ID LOVE TO HEAR YOUR THOUGHTS IF YOU HAVE EXPERIENC WITH THIS!)

i'm 9 weeks post excision surgery, based in the UK, and i've been seeing so much amazing information about GLP-1s microdosed for inflammation and managing endo symptoms, and also PMOS (formally called PCOS).

for context: i have chronic pain and all the classic endo symptoms, but i've also got hair thinning in the hormonal areas, worsening acne, and i've gone up 2-3 dress sizes in the past 6 months. my doctors have been pretty dismissive about the PMOS side of things and i'm still waiting on answers, so i'm trying to take things into my own hands a bit, i just can't keep going like this.

in the UK, GLP-1s aren't something doctors will prescribe for these conditions easily, and going fully private is really expensive, especially when you're out of work (which i am, my endo got really bad before surgery and i'm still recovering, hoping to get back to work in the next few months).

i've been offered tirzepatide through one of the standard weight loss services at a low dose (2.5mg), which is much more affordable, but i wanted to ask whether anyone has experience using it for endo or PMOS specifically? and does anyone have a sense of how soon post surgery is too soon to start?

any non judgmental advice would be so so appreciated, thank you in advance <3

i had my surgery 6 weeks ago, still dealing with pain and a lot of fatigue, not done anything social really yet, aside from having my sister over to the house. i've also been on some short walks and for lunch / dinner a few times with my partner, pretty locally, and after doing these things i always feel really tired or have more pain the next day but its manageable.

im feeling like i really wanna go out and about again and see friends but im scared about getting on busy public transport, i know baby steps, but wondered if anyone else had been mostly house / sofa / bed bound for over a month? no one really tells you what you should be doing, so im trying to listen to my body, went for a short walk alone this morning and i think i'll keep doing more of that, as well as going on short trips to book shops or cafes or things alone, and see some friends doing something relaxing...

i'd just love to know if any others took 6 + weeks to resume 'normal' outside activities and stuff like that.

thanks ❤️

i had my surgery 6 weeks ago, still dealing with pain and a lot of fatigue, not done anything social yet aside from having my sister over to the house and been on some short walks and for lunch / dinner with my partner, pretty locally, and after doing these things i always feel really tired or have more pain the next day.

im feeling like i really wanna go out and about again and see friends but im scared about getting on busy public transport, i know baby steps, but wondered if anyone else had been mostly house / sofa / bed bound for over a month? no one really tells you what you should be doing, so im trying to listen to my body, maybe start doing some more walks alone and going on short trips to book shops or cafes or things alone, and see some friends doing something relaxing...

i'd just love to know if any others took 6 + weeks to resume 'normal' outside activities and stuff like that.

thanks so much as always <3

I've been dealing with endometriosis for years but the last 6 months or so have been a different level. My symptoms got really bad, I had to stop working, and I've just come out the other side of excision surgery. I'm mostly housebound right now which has given me a lot of time to sit with everything, and honestly I'm struggling right now!

I think for a long time I was so focused on getting the diagnosis, fighting for the surgery, just getting through it, that I didn't fully process how much this disease has taken from me. Now that I'm on the other side and supposed to be 'recovering', I feel the loss of it more than ever.

Work, basic exercise, income, energy, my social life, my sense of who I am and what I'm capable of, in the past 6 month it's all changed. I used to feel genuinely excited about my future. Right now it just feels dark and full of question marks about whether I'll ever be well enough to actually live the life I want.

I also have ADHD (currently on the NHS waitlist for meds, so not on anything for that yet), which makes the cycle of getting stuck and not doing anything so much worse. It's not laziness, it's just like I can see exactly what I want to do and who I want to be, and there's this wall between me and it that I can't seem to get through. Depression, anxiety, and ADHD together are a mix made in hell lol.

I've just been prescribed Fluoxetine 20mg (Prozac for those in the US!) and I'm cautiously hopeful, I did a lot of research before asking for it and it feels like the right fit for my profile. But I'm just curious whether it's helped anyone here in a similar situation?

(For context too, I used to be on Citalopram many many years ago, but the reason I chose a different antidepressant is because I've been dealing with other hormonal symptoms like hair loss, acne, weight gain, and I read that Fluoxetine doesn't increase appetite. I also read that the affects lasts much longer so if I forgot to take it one day I wont get that horrible zappy feeling, potential increased pain perception(not entirely sure if thats a good thing or not yet) among other reasons!)

Does any of this resonate? I'd love to hear from anyone who's been through something similar, especially wondering if meds helped you feel more like yourself again, more able to function, what specifically it helped with if anything relating to your endo?

Also, has anyone navigated the specific grief of losing your sense of self and your future to chronic illness / has anyone found their way back from this, what helped?

Sending love and thanks to everyone in this community. This disease is brutal, but feels that much better chatting with you all! <3

I'm about 5 weeks post excision surgery and still in recovery, and something has been bothering me that I wanted to bring here and ask if anyones experienced similar.

A close friend called me recently (her first call since my surgery) and I was genuinely looking forward to it. But as the conversation went on I started to notice that her questions were getting very specific, and I slowly realised they weren't really about me. She'd been researching endo and had started to wonder if she might have it too, and she essentially wanted me to help her work through her symptoms.

The week before this call I had told her directly that I was in a sensitive place and didn't have the capacity for anything heavy or intense right now. To me that feels like a pretty basic thing to ask for, I'm wrapping my head around having a chronic illness, my whole life has changed, I'm unable to work, I'm still in pain, still trying to rest and heal. And yet here I was on what was supposed to be a supportive catch up call, being asked to analyse someone else's symptoms.

Her symptoms, when she described them, sounded like pretty standard PMS - tiredness before her period, some light cramping and nausea, emotional shifts. She said it's mainly like this when she's stressed. When I asked her directly whether her symptoms get in the way of her daily life, she said no. Obviously I want to be careful here because we know better than anyone how dismissive the medical world can be, and I would never want to do that to someone else! But genuinely, nothing she described sounds remotely like what most of us have been through.

For context, she has health anxiety and a history of deeply spiralling over very small things - she once sat me down as if she had something really serious to tell me, I thought she was dying or something, and it turned out to be nothing. It's a pattern I've noticed for a long time. I think she also struggles to understand that normal periods come with symptoms too, and that symptoms alone don't equal a chronic illness.

What really got to me was the contradiction of it all. When I gently said I thought it was a big jump to endo, she initially agreed and backpedaled, but then a day later she was doubling down in long messages and voice notes, saying that she'd spoken to a colleague with endo and kind of trying to defend herself that she could be right. It just felt like she kept coming back and I had to keep holding all her feelings and thoughts as she spiralled when I genuinely didn't have the energy for.

I want to be SO clear here, I have so much love for the people who've shown up for me through this, and I genuinely love being able to support others going through similar things. Having a community of others going through endo means so much, I was kind to her throughout and I said what I thought as honestly and gently as I could. But I've had to tell her I need a few days of space and that I can't be her sounding board for this right now.

It just left me feeling so strange, like there was something almost competitive about it, like she wanted to be part of something that has really really broken my life apart. And I thought, you called your friend a few weeks after her surgery and spent half the call talking about yourself in this very specific context.

Also to add, even before she brought this up, every time we texted she would go on about how she was recovering from a cold/flu and how it was SUCH A HARD recovery, it felt very attention seeking and competitive, like she HAD to mention it every single time. I know she doesn't do it maliciously but when you're bed bound unable to walk and she knows this, it feels a bit icky.

Has anyone else experienced this? Friends, family, partners, anyone who has latched onto your illness or used it as a springboard for their own health anxiety? Did it feel competitive?? And how do you handle people like this without completely shutting them out, especially when you love them?

I hope this message is read with love and my intentions as they are genuine, thank you!