I have an hEDS diagnosis.
I am getting my wisdom teeth out in two days, and am curious on any advice for anyone who has gotten them out! Anything you can suggest, any recs., any experiences that you were not prepared for?
Three are impacted close to the nerve, and the fourth is “erupted” but is growing sideways into my molar 😭
I work with individuals with developmental and physical disabilities. In the summer I bring brothers to six flags, minimally weekly. Its one of the brothers favorites (like if its mentioned as we dont go, behaviors happen). And I do enjoy it. - I am just trying to figure out more ways to accommodate myself. Esp bc in the past year my health has declined a lot. - any recommendation and advice?
I work with individuals with developmental and physical disabilities. In the summer I bring brothers to six flags, minimally weekly. Its one of the brothers favorites (like if its mentioned as we dont go, behaviors happen). And I do enjoy it. - I am just trying to figure out more ways to accommodate myself. Esp bc in the past year my health has declined a lot. - any recommendation and advice?
I work with individuals with developmental and physical disabilities. In the summer I bring brothers to six flags, minimally weekly. Its one of the brothers favorites (like if its mentioned as we dont go, behaviors happen). And I do enjoy it. - I am just trying to figure out more ways to accommodate myself. Esp bc in the past year my health has declined a lot. - any recommendation and advice?
I am looking for any discord, or any other type of connection app, for support and just connection with others who have any version of eds! I was recently diagnosed with hEDS, and would love to just be able to talk to others who understand!
Hi! In a book club, and we are wanting to do a book with a queer author. - y’all gave me AMAZING suggestions for my last post! - so I wanted to see what you got for this topic!!! - also happy pride!! 🏳️🌈
Looking for support groups to join on social media, zoom, in person (live in buffalo ny). Been having a really hard time with old diagnoses’s, new ones, flare ups, and lots of tests and drs appts. - really wanna just talk to people about acceptance and having to change the way you live. - diagnoses’s include: hypermobility, Autism, chronic pain, t1d, vestibular migraines, normal migraines, and getting into geneticist next month with a potential hEDS diagnosis (referred from pcp and ortho).
Looking for YA realistic fiction books, that involve any of the following - LGBTQIA+ (if it involves ACE/ARO - read loveless recently, that would be amazing!), Mental Health, or disabilities (chronic illness, physical, developmental, Autism).