Did anyone with chronic Lyme/co-infections have cyclic symptoms?
I mean periods where you felt almost poisoned for a few days, and then longer periods where you felt completely normal again.
I’m trying to understand if this kind of on/off pattern can happen with Lyme, Bartonella, Babesia or other co-infections.
Hi everyone 👋
For a while now, I’ve been trying to find the cause of recurring episodes, and I’d love to connect with people who have had similar experiences.
The pattern is almost always the same: I feel relatively normal in the morning, sometimes with a headache from the start. Around midday, there is a sudden sharp drop in energy — I have to lie down, I sleep, and light bothers me. Then come nausea, vomiting, headache, abdominal pain, back pain, muscle pain, and joint pain.
For 24+ hours, I can’t eat or drink anything. I sleep through most of the first day. The second day is heavy fatigue, and by the third day I’m still feeling the aftereffects.
Before and after each episode, I feel completely fine. I don’t take any long-term medication and my blood test results are good. The episodes repeat on average every 3 weeks, but sometimes after 2 weeks and sometimes after 4 weeks, with no clear trigger.
The only things found so far are gallstones — gallbladder removal has been recommended — and an incidental finding on my left adrenal gland, likely an adenoma, still being investigated.
So far, migraine, porphyria, carcinoid, celiac disease, and thyroid issues have been ruled out. In 2013, I had chronic Lyme disease.
Does anyone recognize this pattern? Any idea which direction to look next?
Thanks so much for any tips or shared experiences 🙏