u/lmao_livi

Hey! I'm (20F) currently in the hospital awaiting my first bowel resection and not quite sure yet what my recovery timeline will look like. But i do know i want to start working out in some way, wondering if you guys have opinions on the best/most beneficial kinds of fitness to help energize and strengthen with crohns disease? Walking and running will definitely have to be on the list because i will have bedridden in the hospital and at home for the better part of two months now. But when it comes to the gym i really don't know anything, is it recommended to start lifting or more focusing on cardio, etc? What's worked for you? Thanks ^.^

So I've been in the hospital for 6 days on a clear liquid diet, set to be here for up to two more weeks while i await and then recover from bowel resection surgery. I'm just dying not being able to eat solid food. All I can think about is eating, tasting, chewing my favorite foods, it's so bad i've been torturing myself watching cooking and mukbang videos all day. I have a list in my phone of all the foods i want to eat when i'm out. It's extra bad because i've been extremely limiting my diet for months leading up to hospital admission, so it feels like genuinely forever since i've had a good meal. I'm on TPN nutrition through a picc line so all of my nutritional needs are met, I've been drinking different kinds of broth every once in a while, but truly nothing satiates the hunger of wanting to eat a full complete meal. It's to the point where i'm thinking about ordering food just to chew it and spit it out, which is gross and a bad idea because i know i'll just end up accidentally swallowing it anyways. I feel like i have a problem, does anyone please have some tips because i am being tortured 😭

Hi! I 20F got diagnosed around this time last year and my disease has for some reason getting RAPIDLY worse over this last month. I've been on tremfya and had dealt with few days-long flares maybe once a month, but pretty much ate whatever i wanted and drank regularly. But all in the span of this last month (in which i have actually been watching my eating, drinking, and activity), I've become unable to stand or walk without a cane, and almost completely unable to be on my feet for more than 5-10 minutes before needing to collapse on the nearest chair. I can't fully extend my right leg or move it vertically at all without excruciating pain. If i want to cross my legs, for example, i have to use both hands to hoist my right leg over the left. Throughout the day it gets a little better but the nights are the worst. I'm fully folded over even with my cane to just walk to the bathrom. It's severely affecting my life with every day being a 50/50 whether i can go to work, and when not at work being confined to my bed. The lower back and leg pain feels like i had just run a marathon the day before. I have an appointment with a new GI doc about establishing care next week, but in the mean time do you guys have suggestions for how to deal with this? This disease freaking sucks :(