u/loosenetworking

Hi everyone, so two years after a bad reaction to IV Reglan, and a year since another bad reaction to IV droperidol for nausea and vomiting, I'm still suffering from Akathisia which comes in waves and windows but still can be really bad especially in the morning. The last few days I've been stressing out about something out of my control and there's nothing I can really do to stop worrying about it. I think this severe stress made the Akathisia much worse because now in the morning what used to be mild fear and dysphoria when waking up, is now full force. It's not as bad as when the drugs were still in my system, but I'm almost unable to tolerate the feeling these past few days. It's this severe sunken gut, sick to my stomach feeling. Like I need to get up and run away or something or this intense pressure building up inside of me. I haven't been eating much. The last thing I want to do is go to a hospital where they were dismissive of this in the past after giving me these drugs and I went back the following days still freaking out. I also am hesitant to reach out to the psychiatrist I've been seeing for this because I don't feel they understand my situation 100% and are just offering the standard drugs for this like benzos or propranolol which I am too afraid to take, which leads me to the next thing that it's so terrifying that the only drugs that might touch this can make this worse for me in the long run. Just looking for advice or what has helped someone if you were in a situation like mine.

I've moved to Step 4 of the SSDI/SSI process as of April 24, 2026, after a medical review that began in October 2025. My case is complicated involving an adverse reaction to dopamine blocking drugs and I'm left with the urge to move and fear a year later 'Akathisia' (l applied after my first adverse reaction blaming anxiety before I knew what was really going on before the second worse reaction and now worse symptoms afterward and was denied, I reapplied with the new info but they are treating it as an appeal), and I'm curious because the portal now says a representative is performing a "final review" of non-medical requirements, which typically takes 15 to 30 days. Since I've been sitting at Step 4 for a couple days now without an immediate denial, I'm trying to figure out it this delay is a positive sign that they are calculating benefits, or if I should still be bracing for a denial. I've also attained a lawyer through Legal Services a month or two ago and am receiving the Cash Assistance amount in my state for a disabled person since getting a med-1 form turned in saying I can't work from a psychiatrist because of all this. I'm 27 so that's not helpful.