u/lovehershee

Hi Everyone,

I have been taking CSM for about a little over a month along with other supplements. Here is the full list: Famotidine, Milk Thistle, SPM Active, NAC, and Levocetirizine dihydrochloride. I also do a mutli vitamin.

Things were feeling better. I felt 80% like myself, but I was away one weekend and forgot to take my meds/supplements and powder for two days and now I feel like crap again and it's been ongoing even with me taking my meds. Any advice on what I can do to get back to feeling better?

Hi Everyone,

I have been taking CSM for about a little over a month along with other supplements. Here is the full list: Famotidine, Milk Thistle, SPM Active, NAC, and Levocetirizine dihydrochloride. I also do a mutli vitamin.

Things were feeling better. I felt 80% like myself, but I was away one weekend and forgot to take my meds/supplements and powder for two days and now I feel like crap again and it's been ongoing even with me taking my meds. Any advice on what I can do to get back to feeling better?

Hi all! So I have been taking my prescribed medication/supplements for about a month and 1/2 now the list includes: Famotidine, Milk Thistle, SPM Active, NAC, and Levocetirizine dihydrochloride. I also do a mutli vitamin.

I started to feel 85% like myself within 1-2 weeks. Brain fog was better, I didn't have body fatigue as much. My vision has still been an issue though.

Additionally I started the CSM powder for about 4 weeks. Due to what I read about everyone else's symptoms, I did a very low dosage the first week and a half. I only did 1/4 of a scoop. Then after about 1.5 weeks of that I did half a scoop for a few days. Now I am doing a full scoop. I didn't really feel symptoms hence why I felt comfortable increasing.

Last weekend I accidentally forgot to take my prescribed meds and supplements for two days and immediately I felt like crap again. One of the first things I felt was I was on a walk and it felt like ever step I took was like both of my legs had extra weight.

Does this mean I may have to take the medicine indefinitely. Also the CSM powder says it's primarily for lowering cholesterol. Is this the correct one for mold? I'm just not sure if it's really doing anything.

To start I am not 100% sure I have CIRS. Why? Because my VEG and VIP are fine. I can't understand my HLA results because there is no reference interval. And I haven't received my MSH, C3a, C4a, ADH, Osmo, etc test back yet.

My IGG lab tests for IgG Penicillium chrysog, Cladosporium herbarum, Aspergillus fumigatus, IgG Stachybotrys atra all came back high. But I have been told that doesn't 100% confirm that I have CIRS.

I had a major mold and leak issue. I believe it has been fixed since May 29. I have mold assessors coming on Monday to test the air and surface. I still feel fatigued, my main issue is my vision blurriness, and that tingly inflamed feeling inside my body.

So far my doc has prescribed me Levocetirizine, famotidine, quercetin, NAC, Ultra Potent vitamin C, and SPM Active, Azithromycin, Itraconazole, and Naproxen.

I can no longer take Naproxen because of a colonoscopy bleed I had a week and a half ago. And I don't feel like I have much guidance from my doc on when to take the other supplements/prescriptions so I've been googling everything. From my research it does seem a lot of these are to help with inflammation.

All I want is for my vision to get better by next week for my trip so I can actually enjoy it. I have been having issues consistently for a month. I don't know if my doc is waiting on the other tests to come back or what but I haven't heard him mention the Shoemaker protocol since I've done my two appointments but I see on his website it says he follows it.

I haven't gotten any binders or anything like that (again maybe he is waiting on the results).

But is it something I can take on my own? If so does anyone have advice on which binders I should take. Or just next steps in general.

To start I am not 100% sure I have CIRS. Why? Because my VEG and VIP are fine. I can't understand my HLA results because there is no reference interval. And I haven't received my MSH, C3a, C4a, ADH, Osmo, etc test back yet.

My IGG lab tests for IgG Penicillium chrysog, Cladosporium herbarum, Aspergillus fumigatus, IgG Stachybotrys atra all came back high. But I have been told that doesn't 100% confirm that I have CIRS.

I had a major mold and leak issue. I believe it has been fixed since May 29. I have mold assessors coming on Monday to test the air and surface. I still feel fatigued, my main issue is my vision blurriness, and that tingly inflamed feeling inside my body.

So far my doc has prescribed me Levocetirizine, famotidine, quercetin, NAC, Ultra Potent vitamin C, and SPM Active, Azithromycin, Itraconazole, and Naproxen.

I can no longer take Naproxen because of a colonoscopy bleed I had a week and a half ago. And I don't feel like I have much guidance from my doc on when to take the other supplements/prescriptions so I've been googling everything. From my research it does seem a lot of these are to help with inflammation.

All I want is for my vision to get better by next week for my trip so I can actually enjoy it. I have been having issues consistently for a month. I don't know if my doc is waiting on the other tests to come back or what but I haven't heard him mention the Shoemaker protocol since I've done my two appointments but I see on his website it says he follows it.

I haven't gotten any binders or anything like that (again maybe he is waiting on the results).

But is it something I can take on my own? If so does anyone have advice on which binders I should take. Or just next steps in general.

Hi Everyone.

I got tested for mold allergy test that came back low/equivocal. But when I got tested for mold toxicity IGG my tests came back elevated it also came back elevated for mycoplasma pneu which I have no idea how I got that.

Anyway my Doctor of Osteopathic Medicine prescribed this so far quercetin, milk thistle, ultra potent vitamin c, spm active, nac, naproxen, azithromycin, itraconazole, levocetricine dehydrochloride, and famotidine.

I am just getting mixed responses from my primary care and doctors during my recent hospital stay on whether I should be taking these.

So I want to know have any of you taken these to treat mold toxcitiy and/or mycoplasma. Do these sound familiar.

Hi Everyone.

I got tested for mold allergy test that came back low/equivocal. But when I got tested for mold toxicity IGG my tests came back elevated it also came back elevated for mycoplasma pneu which I have no idea how I got that.

Anyway my Doctor of Osteopathic Medicine prescribed this so far quercetin, milk thistle, ultra potent vitamin c, spm active, nac, naproxen, azithromycin, itraconazole, levocetricine dehydrochloride, and famotidine.

I am just getting mixed responses from my primary care and doctors during my recent hospital stay on whether I should be taking these.

So I want to know have any of you taken these to treat mold toxcitiy and/or mycoplasma. Do these sound familiar.

Hi Everyone,

I have been dealing with a mold issue in my apartment for 2 years and it stemmed from a leaked ceiled. We finally got that addressed and repaired last week.

however after years of exposure I believe I still have symptoms. I did a mold allergy test which came back fine and that I only had low or equivocal results. But then I did a blood test and again the IGE was basically normal but the IGG for the different molds was higher than the maximum normal point. Obviously IGG can’t tell you if you are currently dealing with it. But no other test points that anything is wrong. My VIP seems normal as well.

I have weird vision. Brain fog, chronic fatigue, memory issues and very tiny light spots/rashes on my neck and chest And joint pain in my thumb and wrists.

Still waiting on the results of my ADH + Osmo, etc

so far I have been prescribed quercetin, milk thistle, ultra potent vitamin c, spm active, nac, naproxen, azithromycin, itraconazole, levocetricine dehydrochloride, and famotidine.

I havent started yet because I had a procedure and need to wait a while to be able to safely take these but has anyone here used these and it helped? Also is there any quick solution to the vision healing. Im scared the most about that right now.

Hi! I'm back to ask another question. I am having symptoms of blurry vision on top of the brain fog and the weird feeling inside of my body. I'm still working on finding a doctor that can help me but wondering...if there is anyone who has had vision issues. Did it get better? I am currently staying with a friend to get out of the mold for a bit while my building works on repairs and my symptoms have not gotten better. I haven't started the shoemaker protocol because I haven't confirmed this is what I have yet. But just wondering if there is anything I can do to stop the vision issue from becoming permanent.

Hi all. Transparency, I am struggling to find a doctor in New York City. Until I find one can anyone tell me what lab work I can get to determine if I have this. I am currently filing a claim against my landlord about mold in my building. My allergy test for mold came back low/equivocal, so I believe I have CIRS. But I don't know what tests to get done from labcorp or Quest. Does anyone here know the name of the panel I should get done?

Can anyone here break down for me how their symptoms were with CIRS? Like does it fluctuate? Do you feel regular for some weeks and then out of no where start getting hit with the symptoms? If it does fluctuate and come in waves how long do symptoms last usually for you? Is there a pattern for how long they last, how long you feel normal, and when symptoms come back?

I have been living in an NYC apartment building for four years and about 2 years in, there started to be ceiling and water leaks in the bathroom every time it rained. Our landlord at the time would have people come, but they would only ever repatch it and it continued to happen over and over agin. It's gotten to the point where the wall got soaked and now there is a mushroom growing over our window.

For two years I didn't know why I felt bad (fatigue, brain fog, bodily weakness, now joint pain. And I didn't know why these symptoms came and disappeared and then came back again. I got everything checked. It wasn't until this year I thought about maybe mold exposure. I just got my mold blood test back and it says I have low or equivocal abnormal results to 7 out of the 12 molds I was tested for. I did more research last night and found out about CIRS.

The interesting thing is...I left NYC several times last year to visit family in FL. Whenever I visited for just a month, there would be a few days in that month that my symptoms came back (same as when I am in NYC my symptoms never affected me daily only about 1-2 weeks and then go away usually). However, I had to go take care of an ailing family member for 4 months in FL over the summer and didn't feel a symptom at all?

Does this point to this being CIRS? Or could this still be just mold allergy and the exposure to it? Also the issue in the bathroom is still a problem and we are hoping he new landlord gets it solved this week. Since I didn't feel anything in those four months, does this mean the CIRS could go away on its own once the bathroom issue is fixed? Or does it moreso mean that this likely isn't CIRS, its mold allergy instead? Just trying to get some idea because I haven't found a functional doc that accepts my insurance yet. So please don't just say "see a professional." I am on the hunt I just haven't found anyone yet.

Is there anyone I can talk to who is knowledgeale about and has experienced CIRS who lives in NYC? I have a few specific questions that I think only a person who knows about this stuff can answer.