Can anyone here break down for me how their symptoms were with CIRS? Like does it fluctuate? Do you feel regular for some weeks and then out of no where start getting hit with the symptoms? If it does fluctuate and come in waves how long do symptoms last usually for you? Is there a pattern for how long they last, how long you feel normal, and when symptoms come back?
I have been living in an NYC apartment building for four years and about 2 years in, there started to be ceiling and water leaks in the bathroom every time it rained. Our landlord at the time would have people come, but they would only ever repatch it and it continued to happen over and over agin. It's gotten to the point where the wall got soaked and now there is a mushroom growing over our window.
For two years I didn't know why I felt bad (fatigue, brain fog, bodily weakness, now joint pain. And I didn't know why these symptoms came and disappeared and then came back again. I got everything checked. It wasn't until this year I thought about maybe mold exposure. I just got my mold blood test back and it says I have low or equivocal abnormal results to 7 out of the 12 molds I was tested for. I did more research last night and found out about CIRS.
The interesting thing is...I left NYC several times last year to visit family in FL. Whenever I visited for just a month, there would be a few days in that month that my symptoms came back (same as when I am in NYC my symptoms never affected me daily only about 1-2 weeks and then go away usually). However, I had to go take care of an ailing family member for 4 months in FL over the summer and didn't feel a symptom at all?
Does this point to this being CIRS? Or could this still be just mold allergy and the exposure to it? Also the issue in the bathroom is still a problem and we are hoping he new landlord gets it solved this week. Since I didn't feel anything in those four months, does this mean the CIRS could go away on its own once the bathroom issue is fixed? Or does it moreso mean that this likely isn't CIRS, its mold allergy instead? Just trying to get some idea because I haven't found a functional doc that accepts my insurance yet. So please don't just say "see a professional." I am on the hunt I just haven't found anyone yet.
Is there anyone I can talk to who is knowledgeale about and has experienced CIRS who lives in NYC? I have a few specific questions that I think only a person who knows about this stuff can answer.