DARAXONRASIB AVAILABILITY

hi idk if i sound selfish but pls hear me out

we’ve been fighting my mom’s pancan stage 4 mets with liver and duodenum for more than a year now but rn, we just mostly stay at hospital as she either poo blood and for the first time, she vomited coffee ground. She went to emergency as her bp dropped so low but rn its been solved with norepinephrine.

Chemotherapy for 8months really made my mom’s condition worse.. and her body cannot handle it thats why her onco decided to stopped.. altho radiation worked for her but we cannot redo it again as her gastroenterologist said its toxic for her..

With all the pain every hour my kind mom has to go thru, everyday has been unbearable to watch.. thats why when I saw the news about daraxonrasib, it gave us hope but we are from Philippines and we are yet to do the genetic test as in here, it costs a fortune as we dont have the laboratory for it here..

We’re running out of options as my mom is already in palliative care, no chemo or radiation can be given to her current state. Im hoping the pancan gene she has would match the daraxonrasib requirement but idk if we’re even allowed to be part of the trial… or even buy.. i just want my mom to live longer.. i just graduated college and yet to give my mom back the care she gave me.. i just want to show her how beautiful the world is😢

Pls help me.. im very torn… my whole family is.. we will do our best for our mom even if we would be in financial debt for the treatments😢

If you have suggestions pls let me know

praying for everyone fighting this cancer to be healed..

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u/lurkingchic — 1 day ago

HOSPITAL PET PEEVE (MANILA MED SHARED ROOM)

Feel free to skip if you dont agree

My mom is currently hospitalized sa Manila Med, nasa shared room kami (2patient). Sa tagal na namin pabalik-balik sa hospital for her cancer treatment, first time namin na may makasama na sobrang ingay na akala mo naka private room sila. Its definitely okay to talk and have visitors pero to the point na may 5-10 visitors per day, nonstop talking and laughing na akala mo magkakalayo ? Please respect the other patient naman. We already complained sa nurses pero grabe sobrang insensitive netong mga to partidahan na puro teachers pa kayo. Mahiya naman kayo, my mom is very weak and can barely even sleep and kung nakakatulog man, nagigising sya agad dahil sa ingay nyo 🤦‍♀️

KUNG SINO MAN KAYONG GROUP OF TEACHERS AT KAY TEACHER NA NASAKSAK NG STUDENT NYA, KAYA PALA NASAKSAK E KASI YUNG MANNERS HINDI NAAAPPLY SA SARILI AT SA KAPWA MONG TEACHER, WALA MAN LANG NI ISA SAINYO NA SUMAWAY NA SUMUSOBRA NG INGAY NYO.

If you cant afford to lower your voice when talking and be sensitive to the other patient in a shared room, pls have a budget to afford a solo private room.

Salamat sainyo, 2 araw hindi nakatulog ng maayos mama ko. Kawawa pasyente sainyo.

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u/lurkingchic — 3 days ago