u/manacledmind

CP/GDD Receptive Language

Hi everyone. I’m looking for some advice and maybe a little reassurance from parents who have been in a similar situation.

My son is 2.5 years old and has hypotonic cerebral palsy and global developmental delay. He has been making progress, but it’s slower than other children. He currently has over 150 words and knows things like his colors, letters, shapes, and numbers. However, most of his speech is labeling things rather than having back-and-forth conversations or answering questions.

He recently had a speech evaluation where his expressive language score was 82 and his receptive language score was 71. The receptive score has me especially worried. The evaluation was based mostly on me answering questions about what he does and doesn’t do, rather than direct testing.

For parents whose children had receptive language delays around this age:

* Did your child make significant progress with speech therapy?
* Did receptive language eventually catch up, or at least improve a lot?
* How did speech therapy help with understanding language?
* If your child had CP and/or GDD, what did communication look like as they got older?
* Were your kids with GDD ever eventually diagnosed with a learning disability?

We’re currently in outpatient physical, occupational, and speech therapy and we recieve occupational and developmental therapy through First Steps.

I’m riddled with anxiety and sadness from the unknowns about his future. I know every child is different, but hearing real experiences from families who have been through this would really help. Thank you so much for sharing your stories.

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u/manacledmind — 4 hours ago