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I recently landed my first big job as a therapist. Pt of course.
However, I'm nervous because my CP causes me to shake like Parkinsons disease and I have uncontrollable movements in my face.
My supervisor said I can mask for in person only. I'm so nervous people are not going to want me as a therapist even though I specialize in disability.
Would you care if your therapist was disabled?
I’m in my 20s and I fell today and got up and fell again. Anyone else feel so embarrassed to fall over? I still feel like how I did when I was a young kid and I cried out of embarrassment. 😭
First of all thank you all for all the info shared here. New parent to baby with hypertonia in both legs and tension in her back and neck. I’m scared is an understatement. The past week has been full of grief but all the wonderful posts and comments here have helped. I mostly just don’t want my baby to have pain. Now or ever. And I know I can’t control that. So we’re just going step by step. Giving her all the love and attention we can give her and in this past week she’s already improved a bit with the PT we’ve been doing.
So I have a million questions and not sure where to start. So I’ll just ask the first one. For those of you that are parents and your baby has cp, did you have additional kids afterward, how was that experience? We have previously wanted two kids but now with our baby we don’t want to take our focus off of her to give her the best possible life she can have. But also we were talking about sibling maybe being a friend she can have for life.
For those with cp, do you have a sibling- how is your relationship. If you didn’t have one did you wish you had one?
Thank you all for all the encouraging words you give each other. It has helped this parent through an incredibly painful time as we go through the acceptance process that our baby might have life long pain and other difficulties.
I’m male 24 in a wheelchair with cerebral palsy
i'm 30M i have right side hemiplegia and as it gets colder out i find myself struggling mentally because the pain is getting so bad anyone else going through this and what are you doing to help?
I’m 30 with spastic cerebral palsy in a committed relationship with a great guy of six years this November…
Today I tried to surprise my partner by re-organizing our kitchen pantry thing so I ended up moving one huge piece of furniture from one room to the other and then when I went to take my dogs out for the morning, I realized my wheelchair didn’t fit through the back door because of the piece of furniture that I moved…
So I was awake for three hours alone trying to do something really awesome for my partner and he appreciated it but all of my hard work was undone in a matter of five minutes because It didn’t work.
I’ve always been a sensitive person. I have no shame in that but so many in my life have shamed me for being so sensitive or admitting. I’m lonely my partner treats me great loves me with everything in him, however, it would be nice to have friends and family that will actively show up for you whether it’s just hey let’s go to Bingo or hey let’s go get coffee. I feel like this point life isn’t worth it for me anymore because I’m literally I just feels like I’m begging for people to acknowledge my existence. I don’t wish that one day I could magically get rid of the CP. I’m not ashamed of it I am just ashamed of how isolating it feels. I don’t really wanna do this anymore but the only reason I’m not giving up is because I don’t want anybody to find my body. I don’t know how to keep going. Fuck, seasonal depression fuck depression fuck PTSD fuck the fact that I’m disabled fuck the fact that I’m trans and gay. I’m just so fucking tired and maybe I’m just screaming into the void. Maybe this won’t get right at all but maybe just maybe if somebody else reads this they won’t be alone. I feel so fucking alone. I hate myself.
Guys,I passed the road test!
Is it possible that you got your hand/ hands affected when you have Spastic. My hands especially my right hand also having clonus at times.
Is it also possible that I'm a slow typer no matter how hard I try it's because of this and CP?
TIA to all who will reply.
I have Spastic Cerbral Palsy i got because i was shaken and slammed as a 2 month old baby. Im dysphagiac and moslty right side dominant. I have Ataxia on my diagnosis list as well but not sure how or if it applies to my CP diagnosis because i was to young to remember when it was added.
Back in 2013 i got diagnosed with Chiara 1 malformation at 18 years old. Since then my most recent MRI says im now further measuring. In pite of perfectly fitting the critera for Chiara and it remaining on my diagnosis list.
The Neurosurgens I've seen about it have said its not Chiara they consider what i have as low lying herniated tonsil... WHICH IS HOW IVE SEEN CHIARA DESCRIBED 🫠 they also say i should not be bothered by it. IM PRETTY BOTHERED BY IT.
I am pretty sure that its being over looked the fact that i have CP and had a traumatic brain injury leaving permeant damage because i was shaken as a baby and had my head slammed pretty hard (several times, the person who shook me was trying to intentionally kill me and it was done with considerable force)
Doctors will bring up CP and say "well thats common for people with CP" and I will say "but i didn't always have some of these symptoms and other symptoms i did have are now worse and not responding to the standard treatments" and doctors will say "Cerbral palsy dosent get worse over time" and i will say "EXACTLY!"
I think that CP is a factor that is adding to Chiara and visa versa which is potentially causing my symptoms to be more severe or is causing confusion because the symptoms between the two that dont overlap are sitting all buddy buddy with the rest of my symptoms. Like an all inclusive Broke brain boogy woogy party.
I'm just curious if anyone else has these two conditions and if they feel the same way OR if anyone has had a medical provider agree with them or proof of concept has shown.
Thank you everyone 🥰