Husband with Marfans - dissection advice
Hi everyone
My husband (49M) experienced an aorta dissection three days ago. He had emergency surgery as is currently recovering in ICU. There has been some damage… his kidney function is low and he is experiencing paralysis, though he is regaining sensation in his legs every day. They currently have a spinal lumbar in.
He will be in hospital for a while. He has also previously had an aortic valve replacement and a descending aorta graft.
To be honest, I don’t think he was receiving the most thorough aftercare. Yearly appointment with cardiologist and monthly INR tests. On blood pressure meds etc but I was surprised he was not more closely monitored.
Still, this seems inevitable.
I just wanted some advice on what people would recommend in terms of care and lifestyle modifications now following a dissertation? Obviously heavy lifting is totally out. But any other suggestions? How often should he get his BP checked at GP? What kind of exercise?
Thank you so much.