u/marzzz97

I started hydroxychloroquine 200 MG 3 weeks ago because my rheum can’t tell me if I have SLE, RA, or whatever else right now (I have a consistent high ANA, positive RF igm, and consistent rash outbreaks which is what started all of this testing).

Anywho, my body started getting these massive hives(?) all over in different spots daily. I stopped plaquenil about a week ago and these photos are from today. They just keep getting worse. Is this normal??? I feel like Reddit is more helpful than my doctors at this point because you guys have such similar experiences to what I’ve been going through 😭

Usually my rashes are in one spot on both sides of my body and it takes about 2-3 weeks to go away. It’s never been all over like this so I don’t think this is a flare from an underlying condition

But hasn’t formally diagnosed me yet. Said given my blood tests over the last few months and consistent rashes he feels better about prescribing me this after reviewing my latest labs.

Rheumatoid factor (igm) was 16 in March, 12 in July

Ana titer was 1:320

I’ve had massive rash outbreaks consistently since January and my primary doctor initially did the autoimmune panel because her son has RA and had similar rashes. My main question is, is taking this medication actually worth it if I don’t know what I have yet?

My rheum told me to go to the dermatologist if I got a rash for a biopsy but they didn’t want to do one with my latest rash. I’m just so lost, I know I don’t feel right, so any advice or experiences with this would be appreciated 😭😭

Plaquenil rash or flare??

Rheumatologist prescribed hydroxychloroquine