u/mindfulmom123

Hey,

So long story short we are having our daughter get a brain scan for Chiari for breathing issues, ear issues, pain, headaches, uneven muscle wasting etc. Which brought me into Chiari and Tethered cord. I have MCAS that has flares for years and only prednisone treats and regular allergy protocol only treats the rashes and itch, HEDS and POTS. All my symptoms came on 2021-2022 hard. Like can't go outside in summer hard. I have had headaches and neck pain since childhood and several pelvic surgeries and osteoarthritis, I'm 37.

Reading all these things it makes a lot of sense why I say I'm in so much pain but my old primary didn't really believe it or dismisses it. The headaches are not pots related and a lot of the symptoms seem like the severity and lack of protocol response make me think I should be assessed for chiari and tethered cord. My hips, sacrum and coccyx always feel glued together, and full, nerve pain down my left leg when I stand, constant psoas and psias pain. Have never been able to have my head straight always lend forward, I can't even wear my head up because the tension, I now can't nod side to side or up and down, I thought everyone hurt a bit when they sneeze, cough or tilt their head back until now and I now have intermittent nerve pain in my left arm down to my thumb, and also realized everyone else can see fine if they tilt their head back or to the side, I'm starting to develop a lot of cognitive issues and working memory- forgetting how to spell a word mid writing, forgetting spelling in general, forgetting what I'm saying mid sentence and other stuff. I also have non airway sleep apnea which happened when the headaches got bad then mcas, CPAP helps, I don't sweat also which happened with the headaches.. Just so many things.

Who in Washington State is good with these neurosurgical diagnosis and occult just in case? I live by Moses LAKE so now you know what we have been dealing with in terms of quality of care. I just switched to Tabetha Ratliff for primary in Spokane, because mine and my daughters primary just had no concerns and told us shrug that's life. She is now seeing Providence pediatrics. My MCAS was Kerry Drain but her office closed no notice and Dr. Valley for my heds diagnosis. I really want a strong doctor with familiarity because all of the obvious simple spinal issues but also how it seems this is likely why my MCAS has remained untreatable with protocols.

Thanks for your time, please keep your fingers crossed and pray for me and especially my daughter she is 13 and has been dealing with this for 4 years, please pray we find answers for her and she can just have the quality of life all her peers get to experience. Thank you

I had a guest contact me to inform me the property won’t be used at 9pm on Sunday, two days into a 3 day reservation. He didn’t ask for a refund just wasn’t able to make it to his stay. I kindly offered to contact customer support and hoped to get him a refund for Monday and his fees.

So this $740 reservation I was paid. Well Airbnb talks we agree to refund Monday, they charge me $273.25!!! His total discount for his stay. That’s literally what they refunded. I, of course don’t find out til this morning the dollar amount. I didn’t even receive an email, it was in my income section that I owed him.

Immediate reaction, I made $740 total and he is getting $270 that math doesn’t math.

I of course knew it being a Monday night that is cancelled, it should be way less.

In total that one night after Airbnb fees my payout was $153. Like wtf.

Contact support, evidently basic math skills are no one’s strong suit there.

I am just furious that I had to argue for an hour, say I have records of the cost breakdown. Repeatedly while they keep quoting the total price he paid!! Like I somehow have access to 1) they’re 15.5% fee and 2) the occupancy tax they collect. 3) their basic refusal to acknowledge that fees are based on each night and priced differently.
In the end they tried to refund me $100 after sending pictures of the cost breakdown and everything they already have access to proving they were wrong. 273.25-100=173.25 still more than the $156 I was even paid.

I just don’t understand how people can be so stupid.

Does anyone else feel like when they try to explain to a friend or someone else complex trauma they just minimize it to abuse or neglect or just bad parenting? I feel like every time I have ever tried to share they just don’t get it. They don’t understand abuse can be complex but not all abuse is complex and that abuse in families that isn’t complex isn’t missing all of the other things. They just don’t understand the difference in the intensity, length and that it is so much more than what they are thinking. It’s like they equate it to that few times their parents were assholes, not understanding there was so much more missing like love, ever feeling safe, that every negative out numbers the positive 10 to 1 and even if you do receive a positive it is somehow disparaging by use as a comparison.
I just am really struggling to understand how people can’t tell the difference.