u/moisherokach

As title you're No1 tip and it doesn't have to be a med item or idea its simply the best advice you would give yourself to manage EDS if you could roll clock back. It could be something you would do or something you wouldn't do, so long as its the number 1 thing you would tell yourself if you moved back in time!

Perhaps this list can help us with a different slant as I don't have golden meds etc. but we all have that golden advice.

Make a short so we can keep easily reading and sharing.

Thank you

Wow reading these comments has really been reinforcing for me!

Trying to narrow down what about EDS is doing this?

Have been terribly gaslit by NHS gps in past and interested in improving body strength and overcoming inflammation.

Just come from a Bladder scan and its inflamed and I don't drink or do drugs etc. Ears also inflammed in canal and this lasts months!

Could this be something else? Nearly certain that I got eds of some sort from mother who in turn got it from grandfather but thats it.

Thx

Went to try out this bicycle. Unfortunately there was a flaw which was expensive.

Actually felt like a great ride. Particularly enjoy single chainring for simplicity. The weight was amazing. Also the Hydraulic disc brakes were very responsive.

There aren't that many to buy secondhand and it would be amazing to have some other similar makes to shop.

Please suggest as I am eager to search for a deal on Ebay as right now not earning enough.

Thanks

Hi everyone, Finding that while diet, exercise, and a positive attitude are helpful, vagal nerve stimulation has been the most effective method for seeing major improvements.

I suspect that many of us may be experiencing an abnormal response to sympathetic nervous system activation and standard advice for vagal stimulation is often insufficient. I seem to require electrical stimulation or stronger techniques, such as vibration and firm tapping, to see results.

Similar experiences, or if this is perhaps related to my neurodivergence (Dyspraxia), which requires more intense calming and grounding techniques.

Also do you think that this is a strategy to manage (possibly not in the most intense periods alone)?

Should the NHS healthcare system be invested more in TNS and other Tens and more?

Please feel free to share your thoughts and comments.

Regards