▲ 2 r/CIRS

Share your worst symptoms/try to put neurological symptoms in words

Hey yall. I find that most of my symptoms make me feel like I'm literally dying. My neuro symptoms are so scary. Yet, to outsiders/friends/family, I look fine and healthy and can walk. I have had someone say to me "a lot of people live in pain!" Yet I find this so demeaning, as CIRS symptoms are inhumane and literally indescribable. They make me wanna gauge my eyes out with a knife most days. They're not normal "pains" that you can just push through. Can you all please explain how you feel with CIRS??? What do your symptoms feel like? On your worst days. Just so I can show my people how bad this is for reference <3

Sending you all so much love 💙

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u/moldycallie — 24 hours ago
▲ 2 r/CIRS

New builds.... no hope

Touring new build apartments. All of them making me react. Not even sure what to do at this point & can't see a point to living. Have insane neuro symptoms 24/7. Get triggered at grocery stores and restaurants. Feels like I'm dying every day. This isn't living.

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u/moldycallie — 14 days ago
▲ 3 r/CIRS

Could this be herx/die off?

Just started mycobind. Have super intense symptoms tonight full body that will not go away. Could this be from mycobind ?! I am hoping it doesn't last too long

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u/moldycallie — 2 months ago
▲ 6 r/CIRS

Anyone else feel like they're ready to call it quits?

seriously yall. I can't go into my family's house. Or my brothers. Or my grandmas. Or my friends. I was living in a tent and then a hotel. Now the hotel is booked. I can't even go in my car anymore because of transporting things from my contaminated apartment & now my head swells up in the car. I'm not sure what to do at this point, but this is not living. I feel sick every second of every day. Every morning I wake up and just wait til I can go to bed again (even tho I can only sleep like 3 hours per night.) I truly can't take it anymore. I can't.

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u/moldycallie — 2 months ago
▲ 6 r/CIRS

Hope??

How does anyone stay sane or hopeful throughout this process?? I feel like I can't even live life. Ever. This is traumatic and inhumane and just downright fucking terrible. This is not a way to live.

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u/moldycallie — 2 months ago

Mold illness

Hi! Anyone in Springfield have CIRS/mold poisoning & super sensitive?? Any rooms for rent/know of any good apartment complexes? 🙏🙏🙏🙏

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u/moldycallie — 2 months ago
▲ 1 r/CIRS

Cleaning clothes

Has anyone had success with cleaning clothes??? If you're hypersensitive. & clothes that have to be dry cleaned-- like has anyone had success with blazers or work clothes or nice dresses?? any advice??? How about shoes?? Are these a definite no go? Thanks <33

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u/moldycallie — 2 months ago
▲ 10 r/CIRS

Fuck.

Seriously guys this illness makes me so sad and hopeless every day . I can't take it any longer truly. Idk what to do. I am a shell of a human.

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u/moldycallie — 2 months ago
▲ 3 r/CIRS+1 crossposts

San Diego housing / fellow CIRS warriors

Hi!!!! Any San Diego folks with CIRS?? Would love to connect !!!!

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u/moldycallie — 3 months ago
▲ 2 r/CIRS

San Diego??

Hi all :) 27F in the San Diego area. Anyone with CIRS around here??? Need a roommate?? Or just would love to connect :)

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u/moldycallie — 3 months ago