Share your worst symptoms/try to put neurological symptoms in words
Hey yall. I find that most of my symptoms make me feel like I'm literally dying. My neuro symptoms are so scary. Yet, to outsiders/friends/family, I look fine and healthy and can walk. I have had someone say to me "a lot of people live in pain!" Yet I find this so demeaning, as CIRS symptoms are inhumane and literally indescribable. They make me wanna gauge my eyes out with a knife most days. They're not normal "pains" that you can just push through. Can you all please explain how you feel with CIRS??? What do your symptoms feel like? On your worst days. Just so I can show my people how bad this is for reference <3
Sending you all so much love 💙