Anyone get clarifications? AKA leg weakness while walking.
I have pretty common Long COVID features with brain fog, fatigue, headaches and some mild-moderate autonomic heart rate stuff (well controlled on guanfacine). Overall in a very good place compared to a year ago. Tirzepatide has been a real game changer.
But I recently had a huge crash with no identifiable trigger. I am used to the fatigue, even when it is crushing. But I had a return of an old symptom- leg weakness. I have not had this in 2 years. Last time it progressively got worse following a misguided weightlifting session. This time it was 100% unprovoked.
The 1st time it happened it took about a month of high dose prednisone to go away following about 2 months of progression. Then another 8 months to get off the prednisone- fun. Started the pred as a last ditch effort to maintain the ability to walk. This time it went away with only 4 days of steroids, though it’s not 100% gone and I would benefit from steroids now. But on the balance, I prefer not to take them. I’ll revise that when I fall and break a hip.
Asking as I have not seen a post discussing this. I only know one Redditor who had something similar, but that persons is persistent, so probably (possibly) a different cause even though still in the post COVID shiz show category of new and interesting life experiences.
I have an appointment with my PCP to make a plan for getting a workup plan before steroids if this returns. Open to what others have seen.