u/moonlightmanatee

Hi there,

Unfortunately for me, my IC symtoms react to herbal teas, decaf teas, roobios teas, decaf coffee, coffee, espresso, cafe-libs, milk, oatmilk, coconut water, whey powders, whey bottled drinks, chocolate milk, no electrolyte packets, etc

I cannot drink soda either, but I really never cared for it. So there is no loss there.

I can only drink water or otherwise I will be hit with pain.

Is anyone else there like me? And how do you give yourself joy in life without anything other than water? How do you get your calcium?

I don't understand how a lot of people in this sub are able to drink tea or coffee (one of the other), but I cannot tolerate any of it, at all. 😢

I've had this for 7 years now.

I used to be a once a day type of person.

I had my first UTI at age 28 (I suppose, urine culture always came back negative, so I don't know for sure), but I left it untreated and I have never been normal since then.

I've had irritation/pain/urgency/sediment/mucus in urine everyday for the last 7 years.The best I get is going to the toilet 3 times total. Still with urgency and pain. I have never gone back to "once a day" and pain free.

So I notice a lot of people say "I did this/that and I didn't flare."

When you do things that help you not flare, what does "not flaring" mean in your definition?