r/Interstitialcystitis

▲ 26 r/Interstitialcystitis+3 crossposts

Zyrtec to the rescue

I have almost had a UTI every single month since November of 2024. These are all real infections too. I never took an antibiotic for a UTI without a susceptibility report- My bladder was so inflammed from all the antibiotics I would reinfect instantly. Then I stumbled upon a reddit post talking about histamines within the bladder causing burning and urgency. I was so fed up with the constant infections.. my poor gut has suffered too. I finished my last antibiotic on July 3rd, 2026. I began taking a zyrtec every morning when I wake up along with my Uqora supplements and a hibiscus cranberry supplement... my burning and urgency has subsided. I feel like I have my life back. Zyrtec every morning has actually changed my life. I have seen 3 urologists in the past 3 months and they all insist on a cystoscopy.. I am not doing it. They have insisted on ANOTHER antibiotic to be taken before the procedure to prevent a possible infection.

I am visiting these doctors to avoid ever having to take another antibiotic again after taking nearly 25 rounds of antibiotics in two years and they have the NERVE to try and prescribe another one. I understand that they think they need to "find out" why I've been having so many infections but I know the reason- when all of this started i trusted a urogyno who kept prescribing metronidazole for BV. She prescribed 4 rounds of this- it never worked. It only flared up my poor bladder to OBLIVION . This was extremely irresponsible of her. And sadly for me... sent me on a path of infection after infection FOR TWO STRAIGHT YEARS.

I know people wave the white flag for cystoscopies. I understand that there can be scar tissue or a tight bladder neck- whatever. I am not risking another infection and blasting my body with more antibiotics because a urologist wants to stroke his ego- I asked for hydroxyzine or something of this nature to help with the inflammation and burning. One urologist prescribed hiprex (which i did not take because I read on here that it possibly makes IC flare) and wanted to do a cystoscopy. The other two would do nothing to help me until I did their cystoscopy. I saw one urologist after i had started taking the zyrtec. He was so curious as to how i figured out that this drug would help me. I told him I learned it on reddit. He then insisted on a cystoscopy AND a CMG and prescribed two antibiotics and sent me to his scheduling room . I was asking him for hydroxyzine because the zyrtec sometimes makes me retain urine and i was looking for another suitable med. I left feeling utterly broken and shocked that he could look at 3 pages of scripts on a pharmacy letterhead and prescribe even more antibiotics. This list of antibiotics i brought to him was not just a list of scripts they filled. It was a list of infections that wreaked havoc on my life and my body for weeks at a time- I felt violated and pushed into a corner. I feel there is no reason for an invasive procedure like this to feel better. And behold- I figured it out myself.

(I also avoid MSG, citric acid, artificial dyes, chocolate, and too much sugar) (I also try and limit milk and cheese as these seem to lead to increased inflammation)

So far, I am symptom free. When I was on my journey a post like this would have given me hope. I hope this helps.

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u/Badabloom317 — 10 days ago

How do you find the strength to keep living?

How do you find the strength to keep living when you know you have an incurable illness and have to live with pain every single day?
How do you accept that this might be your life for years or even forever? What it will be, suffering life forever, for what..

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u/ouroboros2512 — 11 days ago

CONSTANT Pressure 😭

Is anyone else’s only symptom 24/7 bladder pressure? No urgency or frequency - just a constant feeling of a bowling ball sitting in my bladder. What has helped you relieve the pressure? Did it ever go away?

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u/JohnCenasMom4910 — 10 days ago