One thing that does annoy me still and I am more than a little perdantic on this point. When first diagnosed a lot of patients are told they will go through puberty.

I do not think it is always fully explained that we do not have a normal puberty and we have to have hormone treatment for life and extra treatment if we want to be fertile for a short while.

Having treatment is better than nothing of course but I do feel sometimes that doctors do not take the time (or want to take the time) to explain about the condition more fully.

Tuesday 14th July. 8:30pm UK time. Seminar presentation on male fertility treatment options.

Seminar on male fertility treatment options for Kallmann syndrome / CHH patients.

A research term based at Imperial NHS Trust in London has undertaken a research project to look at the different types of protocols used for male fertility treatments at various KS specialist centres around the world.

They have collected data from various centres to try to identify the best treatment protocols for patients that give the best outcomes and what type of patients get the best results on treatment.

This will be a short seminar where a couple of the doctors will present the data and explain the results they have found.

They will then be able to answer any specific questions patients may have.

It will only be for about an hour and focus just on the results of their study and to outline potential treatment options.

The meeting will be recorded but if anybody would like to attend the on line meeting via Teams or to submit a question, please let me know and I will send you a link.

My latest testosterone level 14.5 nmol/l, 16 weeks after the last injection. (About 336 ng/dl)

My Hb / red cell count / haematocrit are still too high which is not helping my blood pressure.

Also now in the diabetic range due to high HbA1c.

Was due to have a another Nebido shot but going to wait for a few more weeks.

Have to start Metformin as soon as I can.

Need to loose weight so no more full sugar Coke for me, but I can not cut out chocolate totally. Have to have a little in moderation, I need my comfort food but will have to cut down.

I can not really blame the diabetes and being over weight on having KS.

Routine appointment today. I am fortunate to be seen by one of the most experienced KS specialists in the UK. Today I was seen by one of his junior staff but I still managed to have a quick word with the main guy.

One strange thing about the reproductive endocrinology appointments at the hospital I attend in London is that the clinic is held in a gynaecology / ultrasound out-patient clinic. So I normally end up sitting in the waiting room surrounded by expectant and newly delivered mums.

The appointment focused more on my weight, blood pressure and risk of diabetes than my actual testosterone level. Though they could all be linked in a way. It was a good appointment and no need for any physical exams.

The doctor asked when I last had my Nebido shot and I realised was over 3 months ago. I completely forgot about taking it. It will be interesting to see what my T level is like when the blood test results come back.

I certainly do not feel like I have low T at the moment. More critical will be the HbA1c and lipid results to check for diabetes. I will have to arrange a Nebido injection in the mean time.