r/kallmann_syndrome

One thing that does annoy me still and I am more than a little perdantic on this point. When first diagnosed a lot of patients are told they will go through puberty.

I do not think it is always fully explained that we do not have a normal puberty and we have to have hormone treatment for life and extra treatment if we want to be fertile for a short while.

Having treatment is better than nothing of course but I do feel sometimes that doctors do not take the time (or want to take the time) to explain about the condition more fully.

im a young female whos been taking estrogel for about 5 weeks now. i’ve noticed slight breast development, but nothing else. i know puberty won’t come any time soon, but im wondering how long a period will approximately take to come, and if i can get it with gel alone.

if any other women have gotten a period with the gel, your advice and insight will be greatly appreciated. thank you.

Hi there!

Just wanted to speak to someone who got the mini puberty injection and/or started hormones at 10-13.
Just want to understand how socially you felt as a kid and in highschool.

Thanks so much!