u/notaboomer22

I’m so happy to have found this sub. I appreciate everyone who takes the time to answer. I’m recently diagnosed and learning everything I can.
How did you come up with your rescue meds? I’ve currently got OTC painkillers and meclizine and want to talk to my doc about a rescue tool kit.

I’m researching and searching for the best way to start the ‘stack’ Dr. Beh recommends and came across this product. Does anyone have any info or has tried it?
I’m trying to make it easy and get the best quality supplements possible. Any input appreciated!

Interested to hear if anyone else has experienced this.

2 nights ago I began to see a zig zag like light (for lack of a better way to explain it) out of the corner of my eye while looking down at our checked tablecloth.

Totally freaked me out - and then I started researching it and also remembered that my mom used to describe ‘floaters’. This happened after a day of great emotional stress and back and neck pain, which turned into a headache all day - (emotional stress seems to be my number one trigger so far).

Now it’s turned into more of a tiny dot that looks like a little gnat buzzing around in front of my eye. Doc said to get eyes checked to rule out any real retina issues but likely just a ‘floater’.

My research says it may have been there awhile and the ‘episode’ (as I call them) tuned the brain in to seeing it. Or it could be unrelated …

Anyone else have anything like this?

For anyone who feels like sharing. Tell me about what VM has been for you: Your diagnosis, how you arrived at it, symptoms, how you manage.

I’ll go first: My story started on January 2 when I woke up with a vertigo attack. The most terrifying and debilitating thing i’ve ever experienced. Had to cancel my flight back to work in LA and ended up at my daughter’s house trying to recover for weeks. Urgent care, ENT, acupuncture and massage … finally got back to LA, still fatigued and with brain fog. Steroid shot and oral steroids did seem to help…

Saw a chiropractor hoping to help the lingering dizziness, floating head, fatigue - and she cracked my rib during an adjustment. 😳Then had a chest xray to check the rib and was diagnosed with bacterial bronchitis. (Had no clue I had it - I was asymptomatic).

Saw another ENT in LA who said 🤷‍♀️about the vertigo but found an enlarged thyroid. That led to a trip back home, then to an ultrasound,which led to a biopsy and surgery to remove the affected lobe.

While recovering from thyroid surgery, had a second vertigo attack, which reminded me to get back on that issue, as I had been totally distracted by the thyroid situation. Went immediately to urgent care for a steroid shot, husband took me through the Epleys within hours. Have been recovering more quickly from this episode.

Saw a well renowned otolaryngology doc at a big fancy hospital who ordered an MRI and vestibular testing. With symptom review, test results and the fact that I responded to steroids led to VM diagnosis.

Current treatment is remove all common triggers and low sodium diet. Wait and see…

I haven’t been able to work, and luckily for now have SDI that my employer and I paid into. I do not have the type of job I can do if i’ve got a physical limitation which comes out of nowhere with no warning.

I have never had what i’d call ‘migraine’ headaches - But I do have regular headaches that are hard to shake - they don’t seem to correlate with my vertigo episodes.Both my mom and daughter suffer from migraine headaches.

I’ll most likely have to leave my beloved job and find another way to work. I knew nothing about VM until this happened, in fact had never heard of it, and i’m learning as much as I can. I am looking for silver linings and hoping to get back to work in some fashion doing something one day…

TLDR: Diagnosed with VM after a six month road of a lot of nonsense. Have to leave my job and move back east. Hoping to figure out the best way forward. Tell me your story.

I’d love to hear from anyone who has been on a low sodium diet or is just starting one for a vestibular migraine diagnosis.

I’ve just started trying to follow a low-sodium diet as of Thursday in addition to avoiding the migraine triggers indicated by my doctor. I’m looking for any tips, tricks or support! Thanks in advance!