Recently diagnosed & feel a bit left to it?
I’m 25 and in the UK- saw a doctor last year and was told it’s probably just dermatitis, was given a low dose steroid to use for 2 weeks as I’m “too young to have LS”. Things have been getting worse this year so I managed to get in with a different doctor, she examined me and said she was giving me a strong steroid to be used 1 month every day then to stop and have a break, from then on if I have a flare up to ring up and get another dose. I said “so do you know what’s wrong with me?” and she said “it’s lichen sclerosus”. I asked if I need to have check ups or anything and she just said “if it gets substantially worse come back”. From what I’ve seen online some people have had biopsy’s to diagnose, and I really thought I’d be given something like a leaflet and advice on what to do/ what not to do but I’ve had to use google to find any of this out.
It’s the way she told me so casually like it was a thing everyone has, after being worried sick for weeks leading up to this appointment that I may have LS, to then be told I do have it and it just being like “oh yeah you’ve got LS here’s some cream, bye”
Since starting the steroids I feel so much better but I’m just thinking, is this it now?