u/nutters369

Any tips for daily life. Cause I'm exhausted.

Background: childhood trauma, diagnosed after birth of son, seem to cycle every three months, meds haven't helped, asked for ECT and got denied.

Present: I have a family, a job, a home, friends etc but I'm drowning. My mother has also been diagnosed ALS and also has Frontotemporal Dementia.

Trying to be positive for her, trying to parent my kids, trying to be productive at work, trying to maintain a relationship and a clean-ish home all while feeling like my soul is just drained.

For people who are in the same boat please please please give me any tips or tricks or anything that just makes navigating through this cesspool called life a little easier cause I'm done, I don't have anything else to give.

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u/nutters369 — 19 hours ago
▲ 14 r/ALS+1 crossposts

ALS with FTD

Hi Folks,

My mother was diagnosed early March but only last week I found out on top of Bulbar presenting als she also has frontotemporal dementia.

My mother doesn't understand that she's got als, she is convinced it is a sore throat and she needs to have scans done of her chest and throat and to be seen by an ENT specialist.

The problem is that she already has been seen and there's nothing wrong.

My question is, how do I redirect her attention to something else. She doesn't work so is at home every day cleaning and cooking.

I was thinking about maybe getting her into bird watching? I really don't know how to redirect her away from this obsession with the scans and her throat.

I want her to experience something that makes her happy other than a clean house.

If anyone has or is dealing with someone with FTD, any suggestions on what I can do to help her?

Thanks.

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u/nutters369 — 4 days ago