Skyrizi felt like a miracle and now I feel like it’s not working anymore 😢
So I want to say it’s been a little less than a year since I started Skyrizi. It’s been a miracle drug for me despite the stress of having to hang out with Dave every eight weeks since my doctor refuses to help me (and I’m stubborn and don’t want a nurse in my home) and two devices that malfunctioned. I’m starting to freak out because I’ve been on Humira, Entivyo, Rinvoq, and Remicade. What other options are there? I refuse to go anywhere near prednisone ever again. I hate how long prior authorizations take. I have Medicaid, so things take ages.
I’ve developed a fear of eating because of my crohns. I’ll maybe eat a few cheese sticks a day to get by. I’m in Mexico right now and I’m sad I can’t indulge like I want to with food. 🥲 So my average healthy weight is 125-135 lbs. I was 118 lbs before leaving for my trip. The lowest I’ve hit was 111 lbs back in February. 5’8, 30 year old female if that means anything. I’m also a +20 year vegetarian and I try to eat as clean as possible. I’m just tired of this pain and embarrassment. I have to wear pads constantly because I’m terrified of accidents. If I lift anything heavy a little comes out. I just hate this so much.
I feel like Crohn’s has taken so much from me. I’m sorry I’m essentially ranting now. I just feel like y’all understand. I feel so restricted and alone. Thanks for reading this far. I do have a scope scheduled for November. I’m nervous and dreading it as I just had one last year. 🥲
If anyone can think of other biologics, let me know. I just want to have ideas for my doctor for my next appointment. I’m tired of this trial and error. 😭