Skyrizi felt like a miracle and now I feel like it’s not working anymore 😢

So I want to say it’s been a little less than a year since I started Skyrizi. It’s been a miracle drug for me despite the stress of having to hang out with Dave every eight weeks since my doctor refuses to help me (and I’m stubborn and don’t want a nurse in my home) and two devices that malfunctioned. I’m starting to freak out because I’ve been on Humira, Entivyo, Rinvoq, and Remicade. What other options are there? I refuse to go anywhere near prednisone ever again. I hate how long prior authorizations take. I have Medicaid, so things take ages.

I’ve developed a fear of eating because of my crohns. I’ll maybe eat a few cheese sticks a day to get by. I’m in Mexico right now and I’m sad I can’t indulge like I want to with food. 🥲 So my average healthy weight is 125-135 lbs. I was 118 lbs before leaving for my trip. The lowest I’ve hit was 111 lbs back in February. 5’8, 30 year old female if that means anything. I’m also a +20 year vegetarian and I try to eat as clean as possible. I’m just tired of this pain and embarrassment. I have to wear pads constantly because I’m terrified of accidents. If I lift anything heavy a little comes out. I just hate this so much.

I feel like Crohn’s has taken so much from me. I’m sorry I’m essentially ranting now. I just feel like y’all understand. I feel so restricted and alone. Thanks for reading this far. I do have a scope scheduled for November. I’m nervous and dreading it as I just had one last year. 🥲

If anyone can think of other biologics, let me know. I just want to have ideas for my doctor for my next appointment. I’m tired of this trial and error. 😭

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u/ohdarlingamber — 12 days ago

Whenever I visit other countries I go out of my way to make sure stray animals are fed and know they are loved. 🫶🏻

This video was from when I was in São Paulo, Brazil most recently. Everyone thought I was weird for giving love to stray dogs and going out of my way to make sure they were fed. I also have done this in Colombia and Mexico. I buy a lot of pet food and water bowls then set them out for the strays. I’m going to Mexico for a month in September and the first thing I’m going to do is go on a pet food run then feed strays and donate items to shelters. 🫶🏻

u/ohdarlingamber — 2 months ago
▲ 0 r/texts

Am I in the wrong?

So I matched with a guy on a dating app not long ago. Normal conversation. He asks how I’m doing and I told him how I was struggling a bit with my depression. He asks why, I explain, then he subject changes out of nowhere. It made me uncomfortable, so I called out the behavior. Am I in the wrong? Honestly, if a man wants to stop talking to me for standing my ground then he’s not the one for me anyways. 🤷🏻‍♀️

u/ohdarlingamber — 2 months ago

Has anyone changed their major?

Hello, I’m curious if anyone has changed their major and what the process was like. I’ve been going for my BS in psych with a specialization in addictions for over a year now. I’ve realized this path just isn’t for me and I want to change my major to BS in cybersecurity. I emailed my advisor and she said an audit was going to be sent. Of course she sent me an audit of a major that was completely unrelated. I emailed her and now I’m waiting for a new audit. I’m hoping that once I get the correct audit that financial aid won’t give me issues. For those who changed majors: how was your financial aid affected? That’s honestly what I’m worried about the most.

And if there is anyone who went the BS in cybersecurity route, did you like the program?

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u/ohdarlingamber — 2 months ago
▲ 219 r/iphone

I received a text from a blocked contact

This person is blocked for a reason. This is the first time this has ever happened. He’s blocked via phone number and email, however, the iMessage still came through. Has anyone else had this issue?

Edit for context: This individual wouldn’t take no for an answer and just can’t accept “leave me alone”. He knows I’m a big hockey fan and thought using a hockey reference would magically make me respond. 😅 I told him to leave me alone months ago and then I received this text though he’s been blocked for awhile now.

u/ohdarlingamber — 3 months ago

I found an app that shows the nearest bathrooms!

So I stumbled upon an app called “We can’t wait”. It has a lot of great information and maps to help us find bathrooms when we need it the most. I thought I’d share this to help others as I wish I would have found this app sooner. 🥹

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u/ohdarlingamber — 4 months ago
▲ 59 r/Achievements+2 crossposts

Officially a basement dweller ✨

Repost as I accidentally had my 700 day streak in my last post. 😭😅

u/ohdarlingamber — 4 months ago
▲ 6 r/Brazil

Vegetarian friendly Brazilian food?

Hello, I’m leaving Sunday for a 21 day adventure to Brazil and I was wondering what vegetarian options exist and what you recommend. This is my first time visiting, so I’m not sure where to really start.

Thank you in advance. 🫶🏻

Edit: I’m going to São Paulo.

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u/ohdarlingamber — 5 months ago