u/oldandnew2

Anyone know the basis for this cancer claim? Apparently I'm in the 1%

**"**No cancer signal was found at this time. This does not rule out the presence of cancer or predict whether you will develop cancer in the future. Not all cancers can be detected in the blood or by the GRAIL Cancer Test. With that said, in a clinical study, less than 1% of individuals with a “cancer signal not detected” result had cancer."

I got this result in March. April mammmogram led to biopsy which confirmed early stage breast cancer. To be fair, Function say not to skip mammograms, and no woman should. But if your concern is breast cancer you might be better served by paying for breast MRI than a blood test.

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u/oldandnew2 — 1 day ago

In the US - insurance coverage

My husband's company offers health insurance through Cigna. We called them tonight asking whether 3 places I am exploring getting care are in-network (Moffitt, Mayo, CRBS). And they all are! We've met our deductible and max out of pocket for the year, so it seems like this is going to be straightforward and simple, with no billing battles. That shouldn't feel so surreal, but it does.

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u/oldandnew2 — 25 days ago

I'd really like to get this right, the first time. Travel to New Orleans?

I know I'm incredibly fortunate to be diagnosed early (DCIS), to have supportive family, and the ability to utilize the wealth of information available here. My heart goes out to all the people in this club, and I thank you so much for hanging around to help new members like me.

I'd like to hear all I can about mastectomy with direct autologous reconstruction DIEP. Seems like a very rough recovery, but possibly only ONE recovery. I think my second choice would be aesthetic flat closure. I know surgeons in many places are doing them, but so far I've only read positive things about the Center for Restorative Breast Surgery.

How do you choose a patient educator there? How do (or - do you) choose the surgical team? Will they get me in quickly since I have cancer? I've heard of people waiting months but perhaps that is for reconstruction after the cancer is gone.

I'm conflicted about having reconstruction at all - I think I could bring myself to feel okay about going flat. What I have now looks nice in a supportive bra - but they get droopier every year. But OTOH, I don't wear heels or makeup - so I worry that I'd look older and much less feminine without breasts. I'm 61 and headed toward not giving a FF what others think - but I'm not there yet.

Any specifics you can share about direct to DIEP, especially at the Breast Center, would be greatly appreciated. I think if I decide on flat closure there would be no reason to travel and I'd find a surgeon at Moffitt. But if I want the best chance at "one and done" I'm thinking it should be in New Orleans.

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u/oldandnew2 — 27 days ago

Now an MR biopsy of the other breast?

I was diagnosed with stage 0, intermediate grade, ER positive DCIS in my left breast last week. And was already considering full DMX, straight to autolotous reconstruction. I know I'm lucky to have a range of choices available because this was caught so early, and it is only a 6mm area.

Ideally, I'd avoid both radiation and estrogen blockers - in fact I'd like to get back on HRT if all my breast tissue is gone. I think that is possible in some cases? As I read hear about women with recurrences and ongoing battles I feel motivated to do what I can to survive this as an unpleasant episode, not a continuing series.

But now my MRI shows a 9mm linear non-mass enhancement in the the other breast with persistent enhancement kinetics, Bi-Rad 4, MR biopsy recommended. The bruising from the first 12 core, vacuum assist biopsy hasn't fully resolved! And nothing new came up on the left. So maybe the enhancment finding on the right isn't cancer, and maybe a small lumpectomy is still appropriate option for the left. This testing and analysis stage sucks.

What do you wish you had known when you were in my position?

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u/oldandnew2 — 1 month ago

So much to learn, please tell me about MRI, genetic counseling and further biopsies?

First a huge thanks to you all and the moderators. I've already learned so much here and am grateful for this safe space!

I found out last week that my needle biopsy showed 2 of 12 cores had DCIS ER+ with calcifications. The longest extent on slide was 2mm and the total area was 6mm on the mammogram. So I know this is early. But my mom's breast cancer was caught late, when it was stage 3C. I'm taking this seriously and have already started reading about DMX. I want to avoid tamoxifen and maybe even take HRT again if possible.

I have an MRI on Friday and genetics counseling next week. The nurse practioner (because they gather all the info before you get in with the doctor) said the MRI is very sensitive, and could lead to more biopsies. Which scared me because I'm still bruised over 1/2 my breast from the first one. Maybe I can opt out of that, and proceed directly to surgery?

What should I know about MRI? What about the genetic counseling? I did a full DNA sequencing with Sequencing.com - what would be different? On the one hand this does seem genetic - mom and grandma had cancer in the exact same spot, both at age 71. I'm 61 and otherwise very healthy, so 30+ years of surveillance sounds worse to me than losing my breasts. And maybe I'm in the luckiest (of unlucky) positions and can go direct to autologous reconstruction?

I wish surgical biopsy had been offered. The "needle biopsy" took me by surprise in how bad I felt afterwards and how bruised I am, still. And there is this nagging worry that by tenderizing my dense breast like a tough piece of steak they just spread whatever had been captured in ducts around - letting the lion out of the cage, so to speak. The don't biopsy suspected kidney cancer for that reason, they just get it out. So I wonder why it is different for breasts?

u/oldandnew2 — 1 month ago