u/paranormal_lover83

Ill soon have a long journey to visit my son in Blandford, and looking for a book rec that I will not be able to put down. Any recommendations would be appreciated.
Thrillers
Paranormal
True crime - are my usual go to genres.
Thanks 🤍📖

My Nephrologist has just called me to confirm I have IgA Nephropathy. It’s been a long journey, and it’s a relief to finally have answers. Thank you to everybody here for your comments on my many posts about this disease. It’s much appreciated 🤍

I 42 (f) had my biopsy yesterday. All went pretty well, BP dropped to 115/70 from 131/80 afterwards and Haemoglobin dropped slightly. Other than that and a little pain, I have felt fine.
All other blood test that were taken weeks ago came back normal, apart from raised IgA levels and my eGFR hovering at 62%, microscopic blood and protein there as always. It’s been a 9 year long journey getting to this point.
Am I one step closer to being diagnosed with IgAN. Seems so surreal. 😐

Recently had my first nephrologist appointment and he has basically told me he believes I have IgAN. He has ordered an ultrasound and blood tests. He took 7 vials of blood, and I didn’t ask what for. Does anybody know what he may be ruling out before I’m offered a biopsy. I had a CT scan 4 weeks ago because of flank pain. Thanks.

So, I finally have my nephrologist consultation tomorrow after 9 years of permanent blood +++ and protein +++. My eGFR is 96. Urine is typically coffee coloured when poorly. Crazy kidney flare ups once every couple of years at least.
Had all the usual test, CT scan etc.
What to expect? Will I finally be taken seriously. Thanks.

***UPDATE***
For anybody curious. Saw my nephrologist this evening, he’s 75% certain I have IgAN waiting on some blood results and an ultrasound before a biopsy to confirm. This will all take place over the next few weeks.