u/peckcep

Hello, I’m finding myself a bit stuck as far as getting assessed for EDS or vEDS. I’ve sought further assessment after having an MRI that showed a Dolichoectasia (enlongated/stretched/tortuous) of my right anterior-inferior cerebellar artery in my late 30s. As a person with varicose veins since early 20s, plus other related symptoms, I started to look at testing options. My desire to seek further testing is mainly because I have two young children, one of whom has low tone. I’m finding that it’s pretty tough in our BC health system to get any type of follow up, and seems like only private genetic testing at $1k+ is an option. Any info about access points for assessment regarding connective tissue disorders or genetic testing is welcome. Thank you.

Hello, I’m finding myself a bit stuck as far as getting assessed for EDS or vEDS. I’ve sought further assessment after having an MRI that showed a Dolichoectasia (enlongated/stretched/tortuous) of my right anterior-inferior cerebellar artery in my late 30s. As a person with varicose veins since early 20s, plus other related symptoms, I started to look at testing options. My desire to seek further testing is mainly because I have two young children, one of whom has low tone. I’m finding that it’s pretty tough in our BC health system to get any type of follow up, and seems like only private genetic testing at $1k+ is an option. Any info is welcome. Thank you.