Newer iih diagnosis
I genuinely wasn't expecting to find a community on reddit for iih while looking up tips today. My diagnosis was 2 weeks ago and got a lot of restrictions until my follow ups in a couple months.
I had the, apparently, fairly rare indication of iih by having 2 tonic-clonic seizures in 2 hours. It took 3 days in the hospital for my diagnosis because I hadn't noticed any typical symptoms. I had tinnitus, fatigue, and headaches, but I've also experienced all of those consistently in the past and didn't think much of it.
I realized the other day that I think I've been having focal seizures for nearly a year, but didn't know what they were. Is that something anyone else experiences with iih? I thought they were just really intense mini dissociative episodes until I was looking up different kinds of seizures. I'm trying to learn as much as I can.