u/pink_5_

Has anyone tried stem cell therapy for FTD? We're looking at a trial study and curious if anyone's had any change with it.

My husband is slowly fading. He's still independent but he's losing his ability to effectively communicate and understand language. We have twin 3 year old boys and a 17 year old daughter. We're all ok right now.

But when I'm alone and I think too much it's crippling. He's my best friend. He's my favorite person. I know I can do everything solo. I don't want to. Watching him lose himself and be aware of it is the hardest part. We're handling it with as much humor as we can. But in the moments I'm alone, I just cry. I'm taking all the videos and photos. I want more. More of him, time, the way he used to be.