u/point_mixer

My son is 21, he was diagnosed at 19 after two seizures (TC). Then he was seizure free for 18 months and has had two since December last year. Since December, he’s struggled with ‘symptoms’ that I’m now suspecting are small seizures and maybe more than one type of seizure. Forgive me I’m learning on the fly here. We were handed lamotrigine by a neurologist and have been given no follow up or support or information. Which I didn’t realise wasn’t normal until I called an ambulance this weekend during a seizure. We will be seeing a different neurologist soon ( I hope), and I understand it will be a journey, with testing.

My question is more about how I support him in the meantime. He’s been told he isn’t allowed to game until we have more information (it’s definitely a trigger but he’d been doing it in small doses). He does all the right things with exercise, diet, sleep hygiene, hydration etc. Right now he feels hopeless, gaming has always been his favourite thing, and very social for him with both friends and siblings. He has been trying to find a new job for months, and now he’s further limited due to no driving. He’s autistic/adhd (high functioning, although I hate that description method) and dyslexic. My heart is breaking because he has another thing affecting his executive functioning now. He’s also very intelligent.

He needs to find an alternative hobby/interest, for his mental health’s sake. (I know he needs processing time first). Does anyone have any suggestions? Fine motor activities tend to set off symptoms too. What do others do for work? He’s open to ideas, he’s just never known what he wants to do.

I don’t want to hover, or push him too much. It’s heartbreaking to watch, and I just want to give him hope in whatever small way I can. If you’re a young person with epilepsy, I’d love to hear how your parents helped, or what you wish they’d understand about your situation.

Any Aussies want to weigh in on a bank you like that’s on the supported list? Neither of mine are 😕. I’m fine managing it all from my laptop for the most part, but prefer to have an option available on my phone. I still use my card mostly anyway. My adhd brain deals better having options, because I have and will occasionally forget my card, and be screwed without a phone. I also plan to get a Garmin and have Garmin pay available.

Any Aussies in here want to chime in on where you bought your pixel from? Obviously I’m wanting it unlocked in order to put GOS on it. I’ve only ever had iPhones on a Telstra plan, so not sure where to start looking for a pixel. (Yes I searched, I just prefer to have word of mouth input).

Today I deleted both Google accounts I had. I’d waited a few months for this moment to make sure I’d caught any changes I needed to make. Soooooo good to do 🤣. The satisfaction was absolutely worth the pain of changing all those contacts and login details.

I’ve been lurking, searching and reading here for a while and see heaps of people talking about shifting from Windows. I’ve been on Apple since 2008. I’ve never found windows intuitive to use. I’m not a power user. The only Apple services I currently use are iCloud and photos which I’m about to change, just haven’t decided where to yet. I currently use a MacBook, iPad and iPhone 15 pro. My plan is to change to Linux laptop (hardware undecided) and pixel 10 pro with Graphene. Cloud for documents between devices isn’t necessarily a dealbreaker. I’ve degoogled, ditched Meta. I use Qobuz for music. I do use my phone camera heaps.

I have a tech nerd, Linux literate husband who can help. Planning to start with Ubuntu.

So, previous Apple fans - what am I going to miss? What haven’t I thought of? Am I going to hate it? Or will I love the lack of annoying useless apps I don’t use? I haven’t been able to take the plunge yet. I’ve been stuck in the ‘give me a device that just works when I turn it on’ mindset because I didn’t have time to learn a new system. But I can do that now.